Parent to Parent in Texas should be able to answer some of your questions or connect you with more parents in the part of the state you are considering. ...
Please visit http://www.healthfreedomrights.com/default.php. They are trying to control the over-the-counter nutrients you and yours are taking. Arnold...
Hello, My name is Tanya and my husband's name is Greg. We just were told last week that he has muscular dystrophy -- evidently a rare kind??? He has distal...
Tanya. So sorry to hear about your hubby. I did a search of the MDA site(www.mdausa.org) it's a great resource) I found a reference to Distal Myopathies....
I heard a while ago on this list that female carriers of Duchenne have memory problems. If this is true, is there anything that can be done for it? Is there...
... Oh I can't RESIST: I don't know. I can't remember. dej -- ... I learned never to empty the well of my writing, but always stop when there was still...
I'm a carrier and have been told that I have an excellent memory. (and yes I do remember alot) I'm not as good as I used to be but I think that is mainly due...
I also haven't heard of this particular thing. I have read where the DMD boys will have a tendency for have problems remembering things. Research out of...
I havent heard of carriers having memory problems, but my son has short term memory problems. He can remember things from when he was 2(he is almost 9 now)in...
Hello, I'm not sure if I am a carrier or not. One test I had done in 1978 said that I was. I have always had an excellent memory. So I can't tell you one way...
ILuvMere@...
Apr 5, 2005 2:24 am
16077
Veronica Hinton's vast research and my limited research indicate that boys with DMD tend to have poor short term memory but excellent long term memory. My son...
ILuvMere@...
Apr 5, 2005 2:31 am
16078
Jackie, Hi, it is Holly. Does the doctor you go to know alot about dmd? Is it at a mda clinic? Have you gotten any 2nd opinions? Eric has high enzymes as...
Note: forwarded message attached. ... Yahoo! Messenger Show us what our next emoticon should look like. Join the fun. Note: forwarded message attached. Yahoo!...
I don't know where you heard this, but I don't think it's a problem. My mother who is 85 years old, aunt who is 82 do not have memory problems at all. They...
The doctor checked Bradley's labs....actually he checked them awhile back and they were rechecked again a couple of weeks ago because he meant to have the CPK...
(Saw this on MSNBC) Ms. Wheelchair stands up, loses crown Wisconsin pageant winner found to be 'not disabled enough' The Associated Press Updated: 6:54 a.m. ET...
Seth & DeeDee Fuller
sethfuller@...
Apr 5, 2005 3:42 pm
16083
Hy Lisa I thought Johnells, liver enzymes were high but bradleys are high also I have bein trying to get in contact with you,but no luck can yu please let me ...
the CPK is lower because the muscles are already damaged, and new muscle damage has slowed down. hope this helps. kathy, mom of Alex 12 with DMD ... From: Lisa...
Kmmx2@...
Apr 5, 2005 4:31 pm
16085
How old is Bradley now? CPK levels usually decline as the kids have less muscle mass and more fat and fiber tissue where there used to be muscle (at least...
I thank kathy for her information and hope she can continue to give this valuble information about high cpk or anything else she made know about.(DMD)or md. ...
My mother-in-law who passed awayafter a long happy life had no memory problems. She had five daughters all of whom none of have any memory problems. In fact,...
The usual amazing lack of understanding regarding disabilities! This sure reinforces my views on pageants - the "specialized" ones seem to be even worse! ...
Doesn't it mirror life in a way though? I have a rare form of MD called Nemaline Myopathy. I walk with a significant gait...always have. What this has meant...
... Ah, an excellent hoax then. dej -- ... I learned never to empty the well of my writing, but always stop when there was still something there in the deep...
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