Hi, I am needing some advice about getting a personal assistant and any financial programs that may be able aid me financially. I have SSI and Medicaid as my...
I would try to contact someone at the Medicaid office. Right now, I get all of the personnel care attendants paid for out of Jason Medicaid. We live in ...
Hello Lanae, How many hours are you looking for a PA to assist you a month. Diane ... From: Lanae Squires To: MD-List@yahoogroups.com Sent: Wednesday, March...
We had the meeting today about special ed. They told me there was nothing that could qualify him for special ed. because he has no delays. Having Duchenne...
Lanae, Where are you located? Medicaid will cover personal care assistants or personal care workers, but PCAs or PCWs are usually covered through agencies....
Lisa, 504 plans are for children with medical needs that are also children who are not delayed. Under a 504 plan you can pretty much get similar services that...
Lisa, My son doesn't have DMD but we just went through a similiar situation. He didn't qualify for an IEP (special ed) as they aren't teaching him anything in...
Susan
sleemiller@...
Mar 3, 2005 3:02 am
15962
Lisa, Susan I'd have to check, but I didn't think placements or decisions as far as services or qualification could or should be made without evaluations....
Hi, Have you tried home health? they come and bath Eric 3 times a week and now I'm asking for respite and housekeeping. We are going to get it. check...
Lisa, Does his DMD in any way affect his educational performance at this time? I teach a course on Physical, Health, and Multiple Disabilities. Besides the ...
ILuvMere@...
Mar 3, 2005 1:02 pm
15965
All of those are great suggestions! I would like to add one more....have a plan in place for fire drills with several different people in place to help. We...
And once the plan has been written up on paper, have everyone involved in it, walk the route to make sure there aren't any unexpected obsolesces in the way. ...
I would consider contacting your state Department of Education and explaining situation. There is absolutely no reason for the school to deny any services...
Contact your State ARC organization. (http://nichcy.org) They are experts on these classifications. My son, John, age 14, with DMD has a 504 and is also...
From research I did many years ago (in trying to fund respite care for DMD families)... One of the issues to consider when approaching "disability" offices is...
You are right. There is much more help for mental disability. They go to school until at least 21.-There are group homes all over the place, there is no...
Take Action Now URGENT ALERT: Immediate Action Needed on Medicaid Ask Congress to Support Bipartisan Review of Medicaid Take Action! Send a letter to your...
Anyone can also email their senators and representatives. They are listed in the state government's website and each senator and representative has an email...
JoyceGlass@...
Mar 4, 2005 12:25 am
15973
Here is a website where you can send in a form letter, which you can modify to add anything you think it needs to say. Check it out - I got it from UCP ...
Citrus Punch A woman brought a very limp duck into a veterinary surgeon. As she lay her pet on the table, the vet pulled out his stethoscope and listened to...
Sorry it has been so long since the last update! We have been pretty busy. I am feeling better, so thanks for the prayers. I guess it was just the flu and I...
The Medicaid Reform story printed in the Sunday March 6 Tampa Tribune on the Medicaid Reform which also features Tim's picture (and mine). (pg 12-13) You can...
I just learned that the diagnosis of Duchenne MD in my paternal 4th cousin has been confirmed. I can't help wondering if my son's diagnosis has come from my...
If you and your mother both have high CPKs, I would guess it is from your mother. Have you not had DNA testing? That would confirm where the duchenne gene...
Bradley's initial dystrophin gene test in 2000 did not show a mutation so he had to have a muscle biopsy. He just had the new gene test through the Utah...
