Hi, I am needing some advice about getting a personal assistant and any financial programs that may be able aid me financially. I have SSI and Medicaid as my...
Look into the study done in Canada on the different dystrophies to see if it worked for your husbands type rather than waste money on it if it is not effective...
Thanks for the info. I mentioned it to my husband and he seemed open to the idea of trying it when we get some money again. Poor newlyweds at the moment Arlene...
The IEP meeting should not occur until after the referral and evaluation. Carol...
ILuvMere@...
Feb 27, 2005 2:01 pm
15950
In regard to the physical side of DMD Although my son's physical progression was not the main issue when he was in elementary school, he did receive OT and PT...
ILuvMere@...
Feb 27, 2005 1:57 pm
15949
Thanks Danielle and Adele for the advice and information. Back when we tried to get it during his first year of Pre-k, they did a full evaluation with each...
Having DMD Will qualify him for Special Eds services. Even if its just O/T, P/T and bus transportation. If they tell you otherwise, they are wrong. Adele ...
I have a meeting for Special Ed. on March 2nd. Just asked for Special Ed. Eval this week. Received notice in mail today. I think it's an IEP meeting....
Really tall. My son didn't gain weight by using creatine. He thinks it helps however when he went off it for a few weeks like you are suppose to he did seem...
my son had the spinal surgery in august 2004 and had a very similar experience. We have been using his wheelchair tray alot more now because of the feeding...
the article doesn't mention anything about neuromuscular diseases, nor does it give any indication that ibuprofen would adversely affect someone with a...
My son Matt had is spinal surgery in July of 2004 . It was very successful. Matt's curve was at 36. In the hospital Matt got upset a few times because he...
Hadn't heard of any issues with ibuprofen before, and appreciate the info (especially having the article link included). I noticed that prednisolone is in the...
Here is a reference to the study that I am speaking of: http://www.wholehealthmd.com/news/viewarticle/1,1513,894,00.html Creatine for Muscle Strength (Canada) ...
If he is able to land a good job with a group long term disability contract you may be well taken care of for life. Many group plans do not have a pre-existing...
I have an NMD so I would not consider taking ibuprofen. In the attached link on page 8 right side note that it has been found to inbibit muscle protein...
My son has back pain, most often the day after he has 'overdone'. It can be enough that he just lies on his bed and moans sometimes (not often, thankfully). At...
Thanks for the support and information. I will check into the MDA benefits, that would be great if they could help with the orthotics. I am glad my husband has...
Hello all, My son used to get terrible back pain when he swam (or splashed around) in cold water. Eventually, he stopped going in pools unless the water was...
ILuvMere@...
Feb 25, 2005 11:38 pm
15934
It seems as though there is a wide variation in the surgery by different doctors. My son Andrew, now 19, had the surgery when he was 15. His experience was...
Hi All, Eric has Scoliosis and he has opted not to have the surgery. His doctor wanted him to but he just does not want it and I will not make him. We were...
Diane, You may want to directly focus on the regression to his education, such as math skills or reading. Every state is different, but most try to keep a cap...
Terry, glad to hear the surgery was a success. My 13 yr old son with dmd is going to have that surgery April 26. I am very nervous. I was wondering how much...
That would be the Triaminicin with guaifenesin in it. Always look at the ingredients--guaifenesin is the ingredient that thins mucous secretions. You do not...
Hi Everyone I think I mentioned on the list a few days ago that my grandson Austin(DMD), age 10, was having spinal surgery on Feb. 16th. Austin went into...
Samantha, the doctor said to give my grandson Triaminic, the yellow one. ... isnt sleeping well because of the cough! ... http://isp.netscape.com/emreg...
Where in PA do you live? I teach at Duquesne U. in Pittsburgh and some of my coworkers used to work in the public schools. I'll see what I can turn up for you...
ILuvMere@...
Feb 24, 2005 11:51 pm
15926
You beat me to the punch, shoot! :) You said it though... ... From: Adele [mailto:jasona65@...] Sent: Thursday, February 24, 2005 1:43 PM To:...
I'm not Adele, but I have DMD. I also haven't had the surgery. What I do know is that it won't directly effect arm strengh. However, if our spine no longer...
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