Terry, We've had a memory foam mattress as a loaner for the last several days now. We haven't come to a conclusion yet. We're still waiting for an alternating...
My brother and sister in law in SC's ultimate goal is to get back to TX. She grew up in Austin and can't wait to get back home. My husband and I have a hard...
I believe you pay one way or another. If it's not income tax, its property tax, etc. Taxes are high up here too and because it's rural there are not alot of...
Hello All, Just a reminder for you to consider attending Parent Project MD's Legislative Conference March 6-8 in Washington, DC. If you've never gone it is an...
I just found something interesting on a German DMD group: Has anyone heard of using "shape memory alloy staples" to correct scoliosis in neuromuscular disease?...
I am working on getting there...however i still have not been able to find someone to watch Tim for those five days. That is the only thing stopping me. And...
Dee. I'm in sort of the same situation. If I can't find anyone to stay with Jason, I'll have to bring him. If it works out, maybe you and Tim could stay with...
Adele and Dee, Maybe I can help - I live about 10 miles from the Capital and Steve takes care of my son, Petey. I asked Steve if he would be willing to have 2...
Thanks Marie. I'll have to let you know about that. I'm really trying to find someone here as Jason is taking a course at Howard Comm College, and I would...
Where do you live Marie? The problem is I would have to take Tim out of school and it would cost more to fly him and his equipment up and the fact he has no ...
I have a pillow top memory foam mattress. I do not have a sweating issue with it. Some of the inflating mattresss do not have a long life. Some tend to split. ...
George I'm still looking at mattresses. Some of the memory foam mattresses have a quilted top to help eliminate heat build up. I am very interested in this...
This sounds really interesting, though probably on the experimental side. I might be able to ask our Medtronics rep here about it (they are also the company...
So it sounds likely that the boy in Germany was one of the first humans to have this procedure (and he doesn't have an NMD); he was anyway described in one...
What is meant by "pillow top", something like what Terry describes as "quilted top" in the (chronologically) next post to the group? The mattress Alex is...
OK, this is exactly the same technique that was performed recently in Germany. The physician in Germany used the technique developed by the Dr. Betz who wrote...
Anyone considering going may want to check with local organizations for funding. Many in Vermont have conference funding available for families, when...
Hello and happy day, My son Phil is 30 today. This is good news, especially since it symbolizes another old statistic gone awry. May the numbers of our sons...
ILuvMere@...
Feb 2, 2005 1:42 pm
15507
You inspire me for my son! Hope you have a wonderful Birthday Jean Mom to Jimmy 9 DMD...
Happy Birthday to Phil. My son just turned 30 on December 30....
JoyceGlass@...
Feb 2, 2005 2:50 pm
15509
My son has tried a few mattress but the best one for him is the air mattress from Hillrom. It is called the Silkair Low Airloss Therpay. Most of the ...
JoyceGlass@...
Feb 2, 2005 3:14 pm
15510
I'm steven I'm 31 born december 5th just found this group and I think I will enjoy it. I was in a nursing homeand now I'm home with my brother and his wife and...
George my 13 yr old with dmd also sleeps on both sides and back. Do you use a draw sheet? I put one under my son it is folded, so I can turn him easier. He...
Hi Steve. Welcome to the group! My son is 30 years with Duchenne Muscular Dystrophy and he lives with me. Joyce...
JoyceGlass@...
Feb 2, 2005 5:04 pm
15513
HAPPY BIRTHDAY PHIL!!!!!!!! That is so wonderful! I believe more and more will celebrate their 30th birthday also. Anneliese and Raymon (13) ILuvMere@......
Well happy birthday to him too! I hope some medical dictionary editors are reading this thread ;-) George JoyceGlass@... wrote: Happy Birthday to Phil. My...
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