Jason was 9 when he had the surgery. Yes, for the first day, he was in a lot of pain, but the meds helped. Right after the surgery, when he was in so much...
Kathy - stretching, AFO's and standing! You've gone to the limit for your son's health and comfort. Marie ________________________________ From: kaj48ar...
Marie, He is my grandson that lives with me. I think we have done what we should but don't feel like it is helping much. Papa made him the stander, may not...
Kathy, I think that it is great that you have done so much for him to enable him to keep walking and standing until age nine. And I think that at age nine it...
Thank you! - to Scott and all the other dmd'ers who have "been there, done that" and are willing to help us parents of younger children through this process....
Thanks Scott, I welcome any suggestions. We decided on the stander ourself and when I told the Dr. she agreed it was good at that time. May I ask if you ever...
Kathy, I would agree that your initial decision to use the stander was a very good idea. Anything you can do to help him continue to use the muscle strength...
Scott, would you mind using this on the DMD Pioneers website? -Jeff ... From: Scott To: MD-List@yahoogroups.com Sent: Tuesday, November 30, 2004 6:33 PM ...
Jeff, Sure, you can post this on the DMD pioneers web site. Let me know if you like me to place it on the web site and where. Scott ... them ... I am ... ...
Scott, You amaze me ! And give me encouragement. Althrough my grandson took steroids for a year, I agree with your feelings about them. Never did feel real...
Scott, I'm glad to hear that, while your parents may have considered smart mouth surgery when you were younger, they clearly must have decided against it. As I...
Is this a spam? There is only one item rated.- ... so here goes... ... in sharing some of ... little background. ... any drug companies ... treatments they...
Arlene, I checked out the site and it appears to be a way for people to "rate" various treatments for several conditions. It isn't very scientific, all...
Last night the entire show was devoted to steroid use in athletes. It was amazing to see how much strength the athletes gained after taking steroids. It...
JoyceGlass@...
Dec 4, 2004 2:46 pm
15018
This gentleman actually did contact the mailing list owner and it appears that he is not trying to sell anything. I don't really think any harm is meant....
I was the one that suggested to Brett Hodges, the editor/founder, to add Muscular Dystrophy to remedyfind.com. IT IS NOT A SCAM. My reasoning is based on the...
I would just like to make sure that every one understands that the "side effects" don't happen to every one, every time. Each person reacts differently to the...
If someone is making a profit on it, I think it is spam. By selling subscriptions that is making a profit. Arlene ... appears that he is not trying to sell...
Michael is starting to have stomach trouble. Two of the meds he is on can cause stomach trouble, prednison and another. He also had problems with daily...
The main side effect is weight gain. But my son did not have that problem, however we did watch his diet. What I have said a million times salt is the big...
Something I have had for a long while, I hope this doesn't insult anyone. Arlene Tapping the right Woman By Erma bombeck Most women become mothers by accident,...
The difference between anabolic and catabolic is that anabolic steroids build up muscle tissue catabolic breakdown muscle tissue. Anabolic steroids are the...
See http://www.parentprojectmd.org There are new articles on what prednisone and deflazacort do, which is to basically upregulate utrophin. This compensates...
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