Hi Scott- I'm glad you posted a link to the article you wrote; I remembered reading it as soon as I saw your picture! No one can give advice to parents of...
Hello Lynda and Adele, Thank you very much indeed for your response. A `seating appointment' or `pressure mapping' is not at all something that is obvious to...
Sehba, If you are leaning to one side while sitting, you need is something called a laterial support. They attach to your chair and are adjustable. You will...
My son has a new chair and does lean to the side. After getting a new Cloud cushion he hurts while sitting. Was fine before the new chair. Even when we put...
Before I start this off, I have one word to say....UGH!! You know MJ, she never does anything easy!! Can you guess yet where I'm going!?!?!? The last couple ...
Scott, You will be interested to know that I mention you indirectly each time I tell someone that the literature and even the information presented in...
ILuvMere@...
Oct 3, 2004 12:07 pm
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...From the Desk of Timothy M Bird Hi!! I would like to update you with our FUND-RAISING EVENTS! <<drums please!.....sounds of drums....>> So far, for our...
hello how is every one doing , well let me tell you who iam my name is diane. i have mucular disterphy but my main concren was people here just don't care, i...
Hi Everyone, The Nemaline Myopathy Convention is happening on October 23 & 24 in Toronto at the Novotel Hotel. I have enclosed a link which gives you some...
diane, are you new to MD List? what type of MD do you have? where do you live? Advise, dee ... name is diane. i have mucular disterphy but my main concren was...
Hello Diane, What state do you live in? Have you tried some local organizations for help with things you need? Lions Club, Elks Club and places like that are...
Hi all, Here is another journal I just finished. Bet you're getting sick of journals, huh??? If you want to see past journals (incase I forgot to include you...
hello my is diane. just wanted to say talking to people here they won't listen , i live in ga, i have not try to contact lines club, but i will and thanks for...
Just looking for people to talk to regarding Duchene MD. I live in Canada and have a 12 yr old with DMD. If anyone wants to chat and share...looking forward to...
hello my is diane, here is a good pome. your'best' shot. when you joined god's team he gave you a postiton ' but you had no idea of the strenght of the...
Welcome To the group luckygirl. Where in Canada do you live? My name is Adele and my son, Jason is 19 and also has DMD. We live in the US, in Maryland....
Diane, It sounds as if you have had quite a battle just to get better and to keep your sanity. Hang in there and keep writing to us. We need your courage and...
I just had a nice long conversatioin with Danielle...they are so thrilled with the positive response they have received that they have extended the number of...
Hi Luckygirl, We also live in Canada - in Kelowna, BC. Where do you live? Our son with DMD just turned 13. I'd be happy to chat with you. I use email alot...
Sorry about the constant spamming! I've been traveling for the last week and just got a chance to look over the list only to discover that I have apparently...
Sharon, it could be from anyone that you have ever sent an Email to, and is in their address book, shame on them for not having a anti virus program and for...
Apparently, approximately 48 million doses of flu vaccine will probably not reach patients. Great Britain withdrew the license of the manufacturing plant...
We have our appointment tomorrow for the flu shots. As far as I know, they have the vaccine there. They are only taking the elderly and high risk only at...
I hope this survey is legit and MDA has approved it. I believe this is the survey I was asked to complete years ago, and did not. I hate to see people being...
Arlene, check back a few months ago, in the group archives, I looked into this, and sounds legit. markb ... _______________________________ Do you Yahoo!? ...
Ask your IT people at MDA. Get a good virus program and a good firewall (McAffee is what my company uses). Install and run the thing. It will catch and kill...
