I'm doing a research article on TREATMENT PLAN FOR MUSCULAR DYSTROPHY ...I would like any input or suggustions that you may think may be helpful, especially...
- Caleb is 8 and my grandson, which I help his Dad care for. He was about 40 lbs. when he started on orapred and that was in april of 2002, He now weighs 90...
Hi again. I could only go about 2-3 months in the archives about power wheelchairs. It seems many of you have and like the Permobil. The only 2 chairs they...
MurrayD4@...
Aug 2, 2004 6:24 pm
14067
My eldest son has the Invacare Arrow--it's the same as others in the Storm Series, I believe, but has all the needed features. It's cheaper to order the Arrow...
Debbie, my grandson has the Jazzy 1113. He has only had it sense May but it has worked out well so far. He is 8 years old. ... power ... they had ... Jazzy ......
I feel like taking him off would be a good thing myself. It will though in the long haul help the lung function from what I was told. It is a struggle to...
DNA Repair (Amst). 2003 Sep 18;2(9):971-81. Related Articles, Links Desferrioxamine treatment increases the genomic stability of Ataxia-telangiectasia cells. ...
The TDX Storm Series is a new mid-wheel drive chair. I have a TDX5. I also have an Arrow and I use it now as a backup. The TDX5 and Arrow are both the high...
All my chairs have power tilt, power recline and power leg lifters with roho cushions and inflatable bladder backs or adjustable backs. I find these functions...
My 9 year old has the Invacare Storm TDX5 and it is great. It has tilt (I wish we had gotten the elevator too but the rep talked us out of it) and is very...
Diane Smith-Hoban
smithhoban@...
Aug 3, 2004 7:50 pm
14076
$250? According to Invacare the MSRP per tire is $109 for flat-free tires and $32+$18 for pneumatic tires and innertubes. Sounds like a racket to me....
Dear Brian Many thanks for the info. I was able to find what I needed. Yours sincerely JIM USINOZ ... From: adenger <denger2@...> To:...
Jim Partington
jimpartington@...
Aug 4, 2004 4:14 am
14078
Yesterday we got the results back from a blood test done on Davey and his ggt liver enzymes shot up. I was wondering if this is normal for the summer time?...
Greg Evans
gregevans01@...
Aug 4, 2004 10:49 am
14079
HI Greg, having high liver enzyme counts is normal with DMD. Diane ... From: "Greg Evans" <gregevans01@...> To: <MD-List@yahoogroups.com> Sent:...
Hi Diane I realize liver enzyme counts are higher in DMD but Davey's about doubled in the last 6 months or so and I was waondering if it might be due to a...
Greg Evans
gregevans01@...
Aug 4, 2004 2:26 pm
14081
I don't know about the summer thing Greg. Cy's counts are all over often all over the place. When I took him Mayo Clinic they told me his were even higher then...
Thanks for getting back to me Diane. At least I know Cy's are like Davey's, meaning they fluctuate too and its probaly nothing to be concerned about. I have a...
Greg Evans
gregevans01@...
Aug 4, 2004 3:24 pm
14083
I was told it is from a fatty liver. Holly Greg Evans <gregevans01@...> wrote: Thanks for getting back to me Diane. At least I know Cy's are like ...
Greg, Cy has been on Deflazacort for about 3 1/2 years. I have never heard of Naltrexone. What is it? Diane ... From: "Greg Evans" <gregevans01@...> ...
Holly, Back before I knew that high enzymes were in fact pretty common with DMD I had different Doctors tell me that Cy had some kind of Auto immune disease,...
Holly, Here is some info I found about Liver enzymes and DMD and cut and pasted here: Alfred J. Spiro, M.D., MDA Clinic Director, Albert Einstein College of...
Diane, Naltrexone is a benign drug which enhances the immune system. It seems like a miracle drug. Check out all the good things being said about on the ...
Greg Evans
gregevans01@...
Aug 4, 2004 6:49 pm
14088
I have been reading the info on liver enzymes. I am a manifesting carrier of DMD and 3 year old Josh has the disease. We discovered all of this April '03 but...
SKirk81484@...
Aug 4, 2004 8:12 pm
14089
The reason for no DMD and I think Its obivious why , this group has lost at least seven peolpe in the last few weeks. There are plenty DMD only groups out...
That is bad that you single out DMD from your group. Seems like you have something against us parents. I really don't care. The only reason I belong to any...
Elizabeth: First off you need to read what other people put in writing . The other true point is that if it is bad for me to single out DMD Then why is it...
To Unknown Non-DMDer This group has been a God Send for us. I learned so much here from all sorts of people of different MD's. Though the genetics of the...
