George Thank- you for your kind insight. Through the eyes of someone, whom has gone through what we are about to. It makes it somewhat easier for us, somehow,...
Greg Evans
gregevans01@...
Feb 1, 2004 1:25 pm
11944
Hi all: MJ is on acidophilus year round. We increase the amount when on antibiotics but this time, the yeast won. She can't have yogurt or any dairy products...
Although I have FSHMD and not DMD, I began showing signs in elementary school and was diagnosed two months before my 17th birthday. I believe children should...
Those of you around allot of children being in or around a wheelchair yourself. How do you get a 2yr old not to be afraid of a wheelchair? My little 2yr old...
See if the child can become comfortable around the chair when no one is in it. See if the child will go for a ride in the chair once he or she is comfortable. ...
Frank Tetto
tetto@...
Feb 2, 2004 3:13 am
11949
Cody. I do day care in my house. I always have 6 weeks old and up running around. When they are old enough to crawl, they thing that Jason's wheel chair is...
My son is also 4 years old. He doesn't know anything about his MD, but he knows that he can't run or jump like any other kids. I am not sure when is the best...
I've never had a litt'l one afraid of my chair before. My other cousins are fine with it... It just makes me feel bad... Thanx for your suggestions, I'll...
Hi, I don't post very often. I went to a school for children with disabilities and so grew up with a lot of boys who had DMD. I have a form of MD called...
Adele, That is our problem. his doctor can't find the type of his MD so that she can't or don't want to give him anything. We go to the scottish Rite hospital...
Don’t take it personally. Some kids are like that. I watch a 2 ½ years old that is so afraid of the Rugrats character, he cries when he see them and runs...
Not sure what to tell you at this time. Getting the diagnosis is very important. Hopefully, if she is with the MDA Clinic, she'll do many things to find out...
She probably has not been around you enough. My grandson just turned 6 and was around Michael frequently all his life, so he was never afraid of a wheelchair....
Does anyone know if the MDA has a specific policy as to which clinic you may go to? Here in Central, FL we (as adults) are only allow to go to one specific ...
Audrey. As far as I know, you can go to any MDA clinic in the US. Now some clinics will have special doctors and days to see specific MD's. We have an ALS...
Audrey, have you talked to Paula at the Tampa Health services office? Perhaps talking to her she can give you suggestions what to do and where to go. Does your...
I called our MDA regional quarters and filed an official complaint against our MDA clinic doctor. He has the same idea...just go home and do nothing.....he's...
What time of day does Dhruv have headaches? I ask because headaches can be a sign of difficulty breathing. The men with DMD or the parents of older children...
The problem. as I understand it is that the MDA "offers" an hospital to become an MDA clinic. After that, the MDA can't tell the clinic how to run itself....
Not all MDA clinics are like that....the one we take our son to has been nothing but wonderful....of course we have to push for different things and we...
Although that is so true Adele...when you come to think of it, then you really don't need a MDA doctor for that matter. When Tim was originally diagnosed, it...
I would suggest that as many complaints there are of the MDA clinics and doctors nationally, that if the MDA has any concerns of their reputation (if they...
Right on Dee!! Greg ... From: Dee [mailto:hope4md@...] Sent: Tuesday, February 03, 2004 8:42 AM To: MD-List@yahoogroups.com Subject: [MD-List] Re: non...
Greg Evans
gregevans01@...
Feb 3, 2004 4:38 pm
11971
If you live in New Jersey, I need your advice as to how to get started with home renovations. I would like to ask a couple of questions, finances etc. Thank...
Dear Marilyn In NJ there is the Catastrophic Illness and Injury fund. The main problem with the fund is that it is a reimbursable fund and is restricted to...
Frank Tetto
tetto@...
Feb 3, 2004 5:54 pm
11973
Im not in New Jersey but this is slowly starting to pop up for us...so if anyone knows about any help we can get in Texas i would appreciate it also! SAMANTHA ...
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