Marie, we have Care First Blue Cross/Blue Shield of Maryland, we have the standard policy with durable equipment not the HMO. His bipap came from Professional...
Johanna I've wondered the same thing about Alzheimer's, it is a real problem remembering anything, glad to hear Im not alone. The only thing I can say is I...
diana howe
diana.howe@...
Jan 2, 2004 12:38 am
11772
You know the more I read the more I laugh because it sounds so much like me!! So thats what I do is laugh , try to make light of it because it is easier to...
diana howe
diana.howe@...
Jan 2, 2004 12:40 am
11773
Thank you so much for the pics of your son's mobile arm support. It looks like it would help our son tremendously. Could you please post what the brand, ...
Love that idea, Becky. We have a large calendar on our kitchen wall but (you guessed it) I often don't remember to check it! Johanna ... From: Becky Steubing ...
Good info Arlene - thanks for passing it on. Marie ________________________________ From: Arlene [mailto:breezytimber@...] Sent: Wed 12/31/2003 4:01 PM ...
Becky. I got mine through a company called Sammons Preston. Their web site is www.sammonspreston.com. They don't have an on line catalog, but you can order...
http://mom-of-bradley.tripod.com I lost every page on my old site except for the Home page and could not get into it to edit it. None of the other pages could...
Becky, Follow the link below: http://www.jaeco-orthopedic.com/MAS%201.htm This is an arm support identical to Kent's. I'll send $ information when I locate...
Hello everyone, Some of you may be aware that DMD Pioneers Mailing List has been trying to develop a Website. We are currently in the process of writing,...
Does anybody here having any experience mounting a Quadjoy (www.quadjoy.com <http://www.quadjoy.com/> ) or similar mouse on a wheelchair? Something that's semi...
Hello: MJ uses the new natural point track mouse. It is the cheaper version of the eye control...she uses it with a little ring on her finger and an external ...
Hello all, I have a few questions. My son Jimmy is turning 8 on Saturday. I am having a few problems with school. Jimmy seems to be going into a new stage and...
Jean, try not to be too sad. It is such a heartbreaking time for you because of the stage your son is in. He probably is really tired. The people at school...
JoyceGlass@...
Jan 7, 2004 2:31 pm
11785
Dear jean & All, My daughter Maria who suffered a severe brain injury was always fatigued and could not participate in therapies and class much beyond 11:00...
Frank Tetto
tetto@...
Jan 7, 2004 3:12 pm
11786
He is probably tired. How is he sleeping at night? Has he had a sleep study done? Try getting him a quickie wheelchair - bright red with flappy things on the...
Hi Jean, From what you say, I'm sure he really is tired. If you have the impression that the school doesn't follow through on the reduced written work that is...
Jean. As everybody else has mentioned, it's the DMD that is making him tired. It's too bad that your elementary school starts so early for Jimmy. What time...
George and Ginny, Jimmy is not on steroids. He seems to be a very good eater. He eats breakfast before school. As far as I know he does eat his lunch at school...
Maria does not have a significant sleep disorder either. Neurological challenges are very individualistic. I do not know if Provigil will help but my modus...
Frank Tetto
tetto@...
Jan 7, 2004 6:35 pm
11791
In a message dated 1/7/2004 8:16:27 AM Central Standard Time, ... My son Justin will be 8 on April 14 and he also is very tired after school. When he gets home...
In a message dated 1/7/2004 8:34:47 AM Central Standard Time, ... I totally understand that! We got mad at Justin for wanting to be carried at Six Flags(theme...
Hello All, Several of you mentioned IEPs in recent e-mails. My Ian is in a Waldorf (private) school, and his teacher is planning his first IEP meeting for...
Johanna, you're not in the US? Your do not have as much protection under the law when you attend private schools. Each is done be individual schools. These...
That's a long day for anyone, but maybe he isn't eating at school. Or perhaps the walking is too much. What does your pediatrician say about it? Is there...
Jean, It is not at all unusual for boys with DMD to need rest breaks during the day. It can even be written into their IEP's. I'd like to hear more about ...
ILuvMere@...
Jan 7, 2004 10:27 pm
11797
Hi Jean, What a tough time for you and your family! My son Joseph is 7 and is going through much of the same as your son, Jimmy. We have been very fortunate...
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