Recently Joanne asked about powerchairs and snow. I stubled across the following article, which is definitely worth a read for anyone with a powerchair who is...
Hi, ... I have had the same problem with my chair, an Invacare Storm X. I have a high-sensitive mini-joystick and it turned our this wasn't aligned properly...
So first off thanks for the various tips. Here is an update. I think communication problems involving the provider played a large role in the fact that the...
It's definitely good to have friends in the right places. After much thought, though, I'm not sure that PT in school is really the way to go for us. They are...
In reference to therapies try to obtain an extended school day in the IEP and schedule therapies at the end of the day. The argument for the extended day is...
Frank Tetto
tetto@...
Oct 1, 2003 1:04 pm
11192
Excellent. Good for you. Just for your general information, almost anything that has a computer controller, will have a similar analysis system of lights or...
You know, we try to be nice and follow the chain of command. We trust people and live by the ole "catch more flies with honey" adage. These are good values...
In a message dated 9/24/2003 10:17:09 PM Central Daylight Time, dpro@... writes: My son Cyrus , age 8 with DMD, had his second seizure today. He had one...
Mandy, we had a problem with the school and PE. First they wanted to take him, my grandson,7 with DMD, out and put him in a computer lab, afarid he would get...
Joanne. But when you have a child with special needs, the adage that applies here is "The squeaky wheel gets the oil". As to the Omegatrac, it's a great...
Hi Sherry, Yes this does not seem to be related to the DMD. I'm having a hard time getting it diagnosed. The local Neurologist here has basically said this...
Hello everyone: Another two days gone by...they seem to pass quickly yet so slowly. MJ is better, yet worse. Sounds confusing, but it is. The pneumonia has ...
ooooh, you are so right about the squeaky wheel. I try to be squeaky and sweet, so as not to "burn any bridges", but not to be a pushover either. That said,...
It is hard to find a good General Practioner or Internal Medicine physician for adults with DMD. John Hopkins has some good neuro physicians my son went until...
Hi! for the kids/teens/college adults who are moblized by wheel chairs.... I'm trying to find the right "bag' that Tim can use for his school books on the back...
Dee, We are going through the same thing! The way we have always done it in middle school, and last yr. at this highschool were to have 2 sets of books like...
Seth & DeeDee Fuller
sethfuller@...
Oct 3, 2003 9:13 pm
11204
Yeah- one of his bags is starting to tear too. I have baby diaper pins holding them together now. and apparently his Aid does NOT understand this. It's not...
If it's written into his IEP, then they have to do it. If they don't, they are breaking the law. If you have to go that far, then use it. Adele ... From:...
He has these little bags that snaps on -it came with the w/c from the vendor. Its not a "pocket book" size but not a book pack size. Its good to hide goodies...
Before I got my new chair on Dec 15, 2001, I had a regular huge bag that resembled a gym bag that hung from the back of my chair on top of another bag that...
Hi all: Since middle school, MJ has gotten two sets of books. One set is home and the other set is in the classroom, so we don't have to carry them around at ...
Arlene, Do you remember what meds your son was given internally for a fungus? My son has been treated for many years with lotions to his back even though they...
We've found an easy way to raise the height of restaurant tables so that the kids could get their knees under the table even though they both use fairly tall...
Hi Dee, First, does your son have a case worker (or team manager or some such title) or one person who is in "charge" of the IEP? If not, he should. Then,...
I didnt expect High school to be so much more "coomplicated" then Middle school. It was a whiz thru MS and no problems with IEP, etc...and they were a great...
The BIG difference from middle school and high school, is that in high school, they expect you to be an adult. They don't "help" the students anymore. They...
Kidz Konnections - a cool & safe place for kids with chronic & life-threatening illness compiled by parents with kids with MD and other disabilities. Kidz...
Thanks for the "warning" & advise...something I'm learning...quickly. And since he has been in HS-- suddenly I feel like a "teen" again! LOL (miss those old...
