Hi!
I know there are several people with DMD that are on these lists and I have
a question for you, and for anyone else that might be able to answer. I've
just had Trevor come to live with me 2 weeks ago. He's 9. In the 2 weeks
I've seen him become more reluctant to initiate walking on his own. At first
if I left him sitting on his bed or undid the straps of his wheelchair,
within a few minutes he'd get up and go exploring. btw; he's non verbal and
not at a stage cognitively where he can tell me what's going on. Now, he
usually just stays where I've left him. He's still walking with help. I'm
just wondering what is happening with his muscles to make him reluctant to
walk. Does the decrease in healthy muscle make you tire more, does it hurt,
etc? I'm just curious and always try to understand what might be going on.

Thanks,
Barb, new foster mom to Trevor, 9, DMD, autism, and mom to Kayda who is
dancing with Angels (Dec.2, 1988-June 23, 2000) hydranencephaly, story
monster, hug bug and best kid ever! Hydranencephaly website:
http://members.nbci.com/hydranenceph/