MD-List : Message: Re: [MD-List] Looking for Donations

I still have Alex's chair. It won't charge but there are two possible reasons. The first (and most likely reason) was that the kill switch wiring was bad. Nathan had the same kill switch and the same issues with it not charging.

The second possible reason is that the vendor said since it has not been run for several years the chair doesn't recognize the battery. I felt that it was the first reason because it happened while Alex was still alive too.

Neither of which I can fix but seem to be simple issues (Nathan's was fixed fairly quickly). Do you think that would be an issue? Do they do any updates the chairs may need? Some used chairs may need new tires or batteries, etc.

It is a good larger chair that could fit teen or adult. I have the vent battery tray too.

Terri

Just remember
if you look a gift horse in the eye
he just might sneeze.

----- Original Message -----

From: Adele

To: dmdpioneers@yahoogroups.com ; dmdsupport@yahoogroups.com ; MD-List@yahoogroups.com

Sent: Sunday, July 12, 2009 9:32 AM

Subject: [MD-List] Looking for Donations

While I was at the PPMD conference last month, I ran into a women who is the South African PPMD. She was telling us about how bad it is there when it comes to getting powerchairs for DMD boys. They have to pay completely out of pocket, there is no insurance to help.

I just wanted to put this out to the groups. When your son gets a new powerchair, what do you do with the old one? In the past, I have always given Jason�s to the MDA loaner closet. This time, I�m giving it to Maxine in South Africa. They will pay for shipping. Of course, if there can be more than one chair, then the costs will be less per chair. I still have Jason�s old chair from 3 year ago. So, is anyone has a chair they are no longer using, would you please consider donating it the PPMD South Africa.

Adele

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While I was at the PPMD conference last month, I ran into a women who is the South African PPMD. She was telling us about how bad it is there when it comes to...

Adele
navymom2josh

Jul 12, 2009
1:33 pm

Adele, I will talk to Jeff we do have Jimmy's old one what we were keeping for a spare. I will talk to Jeff and see about donating it. I will give you a call...

Jean
dmdmomof1

Jul 12, 2009
3:03 pm

Jean, Let me know if you all need financial reimbursement toward you son's old chair. Thank you for your consideration! Michael Keen, Spirit Roller...

Michael Keen
devldude23

Jul 12, 2009
10:11 pm

Great. I was planning on doing the same with Jason's old chair, But just trying to get it charged has been a problerm. He hasn't used it since getting the...

Adele
navymom2josh

Jul 12, 2009
10:25 pm

Probably needs new batteries; run you about $212 for both. Michael Keen, Spirit Roller Ministries-Director Commissioned Minister Phone: 804-477-1802 Cell:...

Michael Keen
devldude23

Jul 12, 2009
10:31 pm

Does PPMD in South Africa donate the chair to other boys or are they sold to them? Many places in Africa get Donations and then sell them cheap. Diane ... ...

Diane
dianeproc

Jul 12, 2009
9:09 pm

Our ministry can buy manual wheelchairs for $250 each in Kenya and that's loads cheaper than here in the US. I would imagine power chairs are cheaper there as...

Michael Keen
devldude23

Jul 12, 2009
10:08 pm

I can’t speak from any personnel experience, but I was told that any donated chairs would go directly to a boy with DMD. Adele _____ From:...

Adele
navymom2josh

Jul 12, 2009
10:27 pm

Donate any chair to Spirit Roller Ministries, we give to everyone in need =) Michael Keen, Spirit Roller Ministries-Director Commissioned Minister Phone:...

Michael Keen
devldude23

Jul 12, 2009
10:29 pm

I still have Alex's chair. It won't charge but there are two possible reasons. The first (and most likely reason) was that the kill switch wiring was bad....

momdmd
imblueangel

Jul 13, 2009
6:46 pm

Terri, was that email intended for me? If it was we will take the chair and get it fixed. Michael Keen, Spirit Roller Ministries-Director Commissioned...

Michael Keen
devldude23

Jul 13, 2009
7:09 pm

At this time, I think if we can get them a few chairs, it isn't going to matter in how bad a shape they are in. What ever needs to be fixed is going to be a...

Adele
navymom2josh

Jul 13, 2009
8:26 pm

Terri ..we have been looking for a vent tray for Tracys chair do you have that or just the vent battery tray? Reina ... From: momdmd To:...

stbrigid@...
reina_kelly

Jul 13, 2009
8:37 pm

If it goes well (and the new seating on Nathans brand new year old chair goes well) I may have a second chair soon too. Terri PS as soon as I can pry Nathan...

momdmd
imblueangel

Jul 18, 2009
12:46 pm

I didn't have a vent tray for Alex. We had this thing that looks sort of like a back pack and we hung that on the back of the chair in a way that when he...

momdmd
imblueangel

Jul 18, 2009
2:50 pm

I think I know whatcha mean..Tracys chair tilts too and he doesn't like the vent that has a handle so we are trying to find a way to use the other one when he...

stbrigid@...
reina_kelly

Jul 18, 2009
4:20 pm

I,ve seen lots of folks stand their vents up on end to allow more room. Michael Keen, Spirit Roller Ministries-Director Commissioned Minister Phone:...

Michael Keen
devldude23

Jul 18, 2009
4:54 pm

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