--- In MD-List@yahoogroups.com, "Adele" <jasona65@...> wrote:
>kate,
just follow your heart. i was a caregiver for my wife for the last 3
years and i told her when we got married that in sickness and in
health i took care of her with very little help from family or
anything. it can be done but it takes a lot of heart and soul to do.
good luck
mike wife of doreen mytonic muscular dystrophy 11-14-06"rest in
peace "
> Kate, I'm just a little confused. Your do not have a
> disability, but the man you are in love with does?
>
>
>
> I hope I have that right and if so, don't be worried about the
> technology surrounding the man you love. You will, in time be
> more comfortable with it. We are all a little put off by new
> stuff that our guys are weighted down with, but after a while you
> get very use to it. It is easy to understand. You will even
> start to be able to tell when something needs to be taken care of
> by just the sounds the machines make. After all, it is man
> behind the machines that you love.
>
>
>
> Understand that the work is not hard, it just never ending. At
> some point, I hope that you find some help with the care giving
> part, after awhile, we all need a break.
>
>
>
> In the marriage vows, it does state. " In sickness and in
> Health".
>
>
>
> Good luck.
>
>
>
> Adele, mom to Jason age 21 with DMD.
>
>
>
>
>
>
>
> _____
>
> From: MD-List@yahoogroups.com [mailto:MD-List@yahoogroups.com] On
> Behalf Of dracomrrowfoysmom
> Sent: Sunday, December 17, 2006 6:08 PM
> To: MD-List@yahoogroups.com
> Subject: [MD-List] In love... and worried sick...
>
>
>
> I'm so new to all of this... but I am in love with a wonderful
> man. We
> met several months ago online, and are now discussing the rest of
> our
> lives together. There are no caregiver support groups around me,
> and I
> have several questions that I hope might be answered here. He is
> deeply afraid of "not being enough" and while I have told him
> otherwise
> countless times, I want my actions to speak louder than my words.
> I
> will be moving to be with him sometime this summer, and while I
> know
> that it's the right thing (indeed the only thing) to do, I am
> fearful
> of my own ignorance. Aside from being wheelchair bound, he also
> utilizes a ventilation system. The last thing I want is to be
> awkward
> around him, or to treat him like fine china... but he means so
> much to
> me, and if I ever inadvertantly hurt him... I'd have an awful
> time
> forgiving myself. I understand that there will be issues, and I'd
> like
> to think that our love will get us through anything... but along
> the
> way, I could really use some advice.
>
> Thank you all, and blessings,
> Kate
>