I don't think this site would want to exclude you for not meeting some exact criteria, and I feel we should all support each other as much as possible. I'm sure we can learn something from your experiences as much as you can from ours. So, I say, welcome! My 12-year-old son, Ian, has Duchenne MD.
I have Md . Its Char-cot marie toothsyndrome . I'm not a child but was wondering if it is ok to be on the list. Its hard to find people to talk to when they find out you have MD.
Hi, I'm Jen, I'm 23 and have SMA, one of the less represented groups on this list. Most members here are parents of those with DMD. I'm much more used to...
Hi bp, I don't think this site would want to exclude you for not meeting some exact criteria, and I feel we should all support each other as much as possible....
One of my colleagues has CMT. I've blind-copied him on this message. If he's willing to talk with you, by this email I'm asking him to contact you directly at...
I have no problem with this. Adele ... From: Gapko, Andrea M. To: MD-List@yahoogroups.com Sent: Wednesday, July 14, 2004 2:00 PM Subject: RE: [MD-List]...
Pat. Is this a job move? I'll miss you. Adele ... From: "Tudisco Patrick" <tudisco1_14420@...> To: <md-list@YahooGroups.com> Sent: Saturday, August 21,...
Adele Hi! Yes in part is it a job related move. The other factors are Tyler realy gets beat up with our harsh winters and my daughter will start college at...
Stay on the list so we can keep in touch. If Jason has his way, I'm sure we'll be out your way. He wants to go back to Las Vegas when he turns 21, that's in...
Hi Pat. I have friends in Phoenix who I visit sometimes. Maybe we can hook up sometime. Also she has a special needs son (mentally challenged) and might has...
Hi Beth I'll be sure to stay in touch. We will be there in two weeks. Maybe we can all meet in several weeks after we get settled. Pat, Cathy, Kelly and...
Lisa, No problem that it got to us...I was wondering...how old are all your sisters girls???!!! SAMANTHA SAHM to Halee Justin --www.caringbridge.org/tx/justind...
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Jan 13, 2005 1:26 pm
1 day 17 months 2 turning 3 in April 4 turning 5 in June 5 turning 6 in May With her having 5 girls, it makes me wonder if God is sparing them DMD. Although...
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Jan 13, 2005 3:34 pm
Was your son being tested for something else when they stumbled on Duchenne or is there a family history? Usually kids aren't diagnosed until later. A good...
I'm so sorry to hear of the diagnosis. When my son was diagnosed, I grieved long and hard, and I began learning all I could about the disease. The links Joanne...
hi i'm grant from england, i was diagnosed at 4 with dmd. i am 29 now and i still enjoy life. ... From: tikioohaha To: MD-List@yahoogroups.com Sent: Thursday,...
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