Susan, Obviously, I am not a doctor but low blood sodium CAN cause cramping. You are doing the right thing to check it out and my hopes are for the best for ...
DENNIS BARTON
dbart1333@...
Jul 2, 2007 12:11 am
87
Susan, I would also add that my daughter was diagnosed as non salt wasting, but she always craved salt and we noticed that she did not tolerate heat as well as...
Dear Shields Family 4, My son was diagnosed some 15 years ago at age 5 ½. He took liquid cortef solution with mixed results as it did not seem be that stable...
DENNIS BARTON
dbart1333@...
Aug 5, 2007 10:57 pm
90
Hello to the list! My name is Patty Notch. I am a single mom of five - twin eight-year- old biological children; two children who were born in Vietnam, ages ...
Dear Patty, Stop! Take a breath and relax. You are a very caring AND consience parent. Yes, tell the teacher. I have literaly scared my childs Kindergarden...
cbiedrzycki@...
Aug 13, 2007 11:11 am
92
Hey Everyone! Jamie H with MAGIC here. I am trying to develop a brochure with helpful hints about kids getting ready to go back to school. It will address kids...
Having the child WEAR the Medic Alert Bracelet with a Spidel band (elastic links) is the BEST thing to do. My child has worn hers since she was 2 months old....
cbiedrzycki@...
Aug 22, 2007 9:13 pm
94
Hi Everyone, I always gave EACH teacher and school nurse a one page "flyer" w/ my daughter's name and the list of things to look out for - lethargy , etc and...
My daughter turned 19 a few weeks ago. She has always worn the Medic Alert bracelet. Also, I would meet with the teachers, nurse, and clinic aide each year....
I just saw this after I posted a response on this same subject. I did the same thing, but my daughter's teachers actually did have to use the info I provided...
My 5 year old daughter with CAH will be traveling by plane and I am wanting to find out if there is anything that I need to do to be able to take her...
We always pack both the solu-cortef and needles in a zip-lock bag to place separately in the x-ray bin, as you would any make-up or toiletries that you carry...
I never had a problem with air travel and emergency medicines- but as long as you have the prescription - You shouldn't have any trouble- I keep everything in...
I've carried Solu-Cortef and needles in a zip-loc bag on international flights before with no problem. I take the Solu-Cortef in the box from the pharmacy...
We are faced with a change in health care coverage that is "forcing" us to consider generic equivalents for Cortef. Our granddaughter (now approaching 1 year...
We switched from the liquid Cortef directly to generic Hydrocortisone, and never had a bit of trouble with it in 7+ years. It's not expensive either! Monica ...
Pharmaceutical companies always say that the generics are the same as the brand name. But we found otherwise with the Cortef and the Florinef. My daughter...
My daughter (8 ½) recently switched from Cortef to the hydrocortisone tablets. We changed due to insurance – Cortef went from $15 to $30 per month and the...
Hi all In regards the generic brand- my two children were on cortef and were changed to generic. We did not like it because I have to divide the pills and i...
Hi, We don't have any experience with generic drugs, but we have given our daughter her tablets in a small spoonful of yogurt and they have always gone down...
We are having our 6th annual get-together. If you can make it, please contact someone of the list, so we can give you more information about the get-together....
Hey Everybody! FYI- MAGIC is having a FREE mini-educational program for families (all disorders) of kids on gh therapy. It is Sat. Nov. 3rd in Tampa. Directors...
I heard that if a person removes their adrenal glands they have less estrogen in their bodies causing them to be fertile, non hairy, non masculine and less...
Hi, I am new here, I have a son age 9 who was diagnosed right after Christmas in 2006 with simple-virilizing CAH. He was started on cortef and after 3 months...
My daughter took Depot-Lupron injections from the age of 5 through 13. My understanding is the reason to give Lupron is to stop pubertal development. If your...
Thanks for the input Kay. My son has a bone age of 14 so the Lupron is to stop puberty. The early puberty is what led us to seek help for him. He started...
Gaining weight in the face and torso sounds like Cushings syndrome. Cushings is caused by excess Cortisol. Every time my daughter's cortisol level needed...
