Hi, We don't have any experience with generic drugs, but we have given our daughter her tablets in a small spoonful of yogurt and they have always gone down...
We are having our 6th annual get-together. If you can make it, please contact someone of the list, so we can give you more information about the get-together....
Hey Everybody! FYI- MAGIC is having a FREE mini-educational program for families (all disorders) of kids on gh therapy. It is Sat. Nov. 3rd in Tampa. Directors...
I heard that if a person removes their adrenal glands they have less estrogen in their bodies causing them to be fertile, non hairy, non masculine and less...
Hi, I am new here, I have a son age 9 who was diagnosed right after Christmas in 2006 with simple-virilizing CAH. He was started on cortef and after 3 months...
My daughter took Depot-Lupron injections from the age of 5 through 13. My understanding is the reason to give Lupron is to stop pubertal development. If your...
Thanks for the input Kay. My son has a bone age of 14 so the Lupron is to stop puberty. The early puberty is what led us to seek help for him. He started...
Gaining weight in the face and torso sounds like Cushings syndrome. Cushings is caused by excess Cortisol. Every time my daughter's cortisol level needed...
Tiffany, Is your son on liquid cortef or a pill? My son had a hard time with getting good numbers while using the liquid. The pills were better/more stable...
DENNIS BARTON
dbart1333@...
Oct 29, 2007 1:12 am
117
Okay.but I don't know your name. I am Dennis Barton and my son is Andy. He is now 21 years old and was on Lupron Depot from age 6 until about 13. Too much...
DENNIS BARTON
dbart1333@...
Oct 29, 2007 1:29 am
118
Hey- If anyone is in the Tampa, FL area this Saturday Nov. 3rd- the MAGIC Consultant and parent of a CAH child (Cathy Kusch) will be there for a meeting and...
Has anyone seen this???? German woman wins case over sex change operation http://www.reuters.com/article/lifestyleMolt/idUSL072065020080207 There is alot of...
Has anybody seen what is going on???!!! Check it out and help!!! We have to stand together to make a difference for all the kids...please go here and send...
Hello Everyone! Jamie with MAGIC here. Things are moving faster than light now that people are finding out we know about the events. An update was blasted to...
Go to www.magicfoundation.org and look to the upper right for the "official" announcement. I want to thank everyone who made calls, faxed, emailed etc. It was...
DC Update: This week we (MAGIC and the Lawson Wilkins Pediatric Endocrine Society) finalized language which we are pleased will protect children and adults who...
From Jamie at MAGIC- no news on Washington yet. Hope to have an update (please God) sometime next week! However, I need for everyone who wants to have a...
HELLO, MY SON WAS DIAGNOSED AT BIRTH WITH CONGENITAL ADRENAL HYPOPLASIA. THIS IS A LIFETIME DISEASE WITH A LACK OF SEVERAL HORMONES. WE WHERE TOLD MY SON WOULD...
I have a daughter with CAH - diagnosed at birth. The blood tests are pretty specific. Have you thought of getting a second opinion? Have you talked with the...
cbiedrzycki@...
Jun 28, 2008 8:47 pm
129
Hi! I live in Houston and I have 2 children with CAH. Unfortunately short stature is one of the side effects. I agree that he needs to see another pediatric...
Dear Mom, It does not sound like your son has CAH or Congenital Adrenal Hyperplasia. With CAH, he would have an advanced bone age. For instance, if he had CAH...
DENNIS BARTON
dbart1333@...
Jun 29, 2008 10:32 pm
131
this article is from Cares foundation maybe this could be related: I hope it helps. Limited growth potential resulting from advancing skeletal maturation is...
Hi - I'm a mom of 3 kids (2 non-affected)with the third diagnosed with Salt Wasting CAH when he was 11 days old. He is now 7 months old and on three time daily...
We have a daughter who is 13months she is a saltwaster, we never tried the tablets the doctor gave us the sodium in liquid form. We haven't had any problems...
Hi! I am a mom of 2 salt wasting cah girls. We ended up using liquid sodium chloride (usually found and administered in the er). It was easier to put into...
Christine Campion
ccampion72@...
Jul 5, 2008 1:46 am
135
Ask your Doctor for a prescription for Sterile Saline and use a syringe to extract the correct amount and add it to formula or foods. This is what I used when...
