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MAGIC-CAH

Group Information

  • Members: 78
  • Category: Support
  • Founded: Oct 16, 2006
  • Language: English
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Description

Welcome: This Congenital Adrenal Hyperplasia list is for parents/caregivers only of children with CAH, Salt-Wasters and Non Classical (Late Onset) CAH. Discussions will include the sharing of ideas, concerns, experiences, and information that is related to CAH. This list is not a substitute for your physician and we ask that any medical information discussed over this list should be communicated with your physician. We want this list to be of support and encouragement to all CAH families who wish to post on it. Please speak with your physician if you have any questions or concerns about your child’s medical needs.

Most Recent Messages

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Insurance problems
From Jamie at MAGIC- no news on Washington yet. Hope to have an update (please God) sometime next week! However, I need for everyone who wants to have a
Posted - Sat Apr 12, 2008 12:29 am
ghdmom2
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Update April 5th from Jamie at MAGIC
DC Update: This week we (MAGIC and the Lawson Wilkins Pediatric Endocrine Society) finalized language which we are pleased will protect children and adults who
Posted - Sat Apr 5, 2008 10:51 pm
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Update from Jamie at MAGIC
Hey everybody, Don't panic!! PLEASE tell everyone you know to make 2 calls to Schumer and Grassley again today!!! I am sorry I do not have more
Posted - Wed Mar 5, 2008 6:13 am
ghdmom2
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Legislative Update!!! WhaHOOO!!!
Go to www.magicfoundation.org and look to the upper right for the "official" announcement. I want to thank everyone who made calls, faxed, emailed etc. It was
Posted - Tue Mar 4, 2008 2:20 am
ghdmom2
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URGENT Legislation update- call Congress Monday!!!
Hello Everyone! Jamie with MAGIC here. Things are moving faster than light now that people are finding out we know about the events. An update was blasted to
Posted - Mon Mar 3, 2008 1:56 am
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Message History

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec
2008 2 4 2
2007 2 39 28 14 3 12 7 10 1
2006 2
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