Keep a close eye on your e-mail address for this group and all groups to prevent bouncing of the e-mail. If you continue to bounce your membership will be...
Lymphedema@yahoogroup...
Feb 1, 2008 1:59 pm
5010
How to get the most out of belonging to an online support group (subtitled) The way this list will be directed/moderated/facilitated Thanks to Linda Smith,...
Lymphedema@yahoogroup...
Feb 1, 2008 1:59 pm
5011
All members can access the files at: http://groups.yahoo.com/group/lymphedema/files...
Lymphedema@yahoogroup...
Feb 1, 2008 1:59 pm
5012
Hi, I'm new to the group, and came here hoping to find folks who have had experience using a Reid Sleeve. I have lymphedema in my left arm, it didn't start...
Hello, I have the reid sleeve for my leg and I love it. I was wrapping my leg for over a year every night. However, within a week after using the sleeve I...
Nancy, I don't know much about arm LE, but I notice you did not say anything about having had treatment or even a consultation. You're not supposed to have...
Hi Nancy! I also have le in my left arm after breast cancer surgery (1998)... I don't have a Reid Sleeve, but am looking into it. Most important, have you had...
My daughter has LE in her arm and has used a Reid sleeve to sleep in for the past 6 yrs. We are on our second one because she has grown .I don't know what we...
... Hi Nancy: My wife Pearl is a 16-year survivor of breast cancer (21/24 nodes positive) who has had lymphedema of the upper arm from the beginning. We have ...
Thank you for the info. I'm trying to find some documentation showing that it lowers the risks from lymphedema. My doctor is in his 70's and until I gave him...
That's fine with me , anything that will help.But I will tell you the problem is your doctor, the insurance company will most likely not take anything you...
Unfortunately, my doctor is the only doctor within 125 miles that is taking new patients. Around here you don't find a new doctor. Unless we get some new...
... Please feel free to use anything I publish, but be aware that it will not be worth anything in convincing an insurer because I do not have an "MD" after my...
You might also try calling your states insurance commission and find out your states laws on durable medical coverage .I did the same on a separate matter for...
Thanks for the info. I actually have someone at Penisula Medical working for me to try to convince them. She says that my insurance is the worst. She's...
The Reid sleeve does not fall down at all,it's like a air cast,very durable.In fact my daughter (she's 14 now) and her friends call it her "Robo Arm" it has...
I don't know if there are any medical professionals here, but I have a question about my lymphedema. Why, of all of my fingers, do I only get swelling on my...
Hi Cheryl, I sent your question to Dr. Chikly and to Dr. d'Harencourt aka Iker. I'm not a doctor but can give you my opinion after years of having le, talking...
... Tina, There's no problem with the finger that I know of. I am seeing a lymphedema therapist for weekly massage, and using the bandages to wrap the arm,...
I had a major abdominal surgery last December for uterine carcinosarcoma. It included removal of pelvic and para-aortal lymph nodes. Now I have "pelvic...
Jan, I am so sorry you are having to deal with the lymphedema so soon after surgery, and having to think about that problem along with wondering if your cancer...
Hi Zazie, I hadn't read your history before. You have certainly had a rough time. What you say is true, we don't get much better but we do get worse. I have...
I AM 33 A CANCER SURIVER OF THREE BRAIN SURGERIES,AND AN ANURISUM I HAVE LYMPHEDEMA IN MY LEGS LIKE MY DAD ALONG WITH OTHER PROBLEMS ALL MY MAJOR PROBLEMS...
Hi Jan I'm sorry you have to deal with le as do the rest of us. I wish there was a magic cure, we can hope for one and maybe it will be true someday. They are...
1. Lisa, I could not read your post. Can you post again with a different font? 2. Tina's eloquence sometimes brings tears to my eyes! 3. Tina mentioned...
... Jan, Sounds to me that your therapist is giving you good advice. There is a lot of redundancy in the abdominal and pelvic lymphatic pathways, and the...
The man in my life, my boyfriend of 3 yrs, suffered from virus-related nerve pain which doctors had not helped him deal with. He also suffered financial...
Dear Zazie, I am so very sorry to hear about Mike. What an awful shock for you. My thoughts and prayers are with you and with Mike's family. I understand it...
