An international support group (formed in 1998) for adults and parents of children who have a very rare lymphoproliferative disorder called Lymphomatoid Papulosis (LyP). LyP is now generally recognized as a form of CD30+ T cell lymphoma (CTCL). CTCLs includes Mycosis Fungoides (MF), Anaplastic Large Cell Lymphoma (ALCL), LyP and borderline cases. LyP and MF form a spectrum of diseases, with LyP being considered the least aggressive variety (while it is a chronic condition, it is not life threatening).

Please note that our list is open to those who have both LyP and MF or ALCL. If you DO NOT have LyP, you will want to join Judy Jones' support group, which is run by the Cutaneous Lymphoma Foundation (CLF).
Send your e-mail to: judy@CLFoundation.org

We are pleased to anounce that the Cutaneous Lymphpma Foundation has produced a pamphlet for us called LyP Fast Facts. Please click on the Related Link in the box below to order yours today.

**Important** Please join us in helping current and future LyP patients worldwide by joining Dr. Marshall Kadin's LyP Registry at Harvard University in Boston, MA (you don't need to travel to New England to particpate). By doing so you will be helping to advance knowledge about LyP.
Send your e-mail to Dr. Gomez at mgomez1@bidmc.harvard.edu
Please include your postal mailing address, best time to be reached by phone and permission to discuss your situation via e-mail.

Dr. Kadin is now working with the Dermatology Department at Roger Williams Medical Center in Providence, Rhode Island. His new e-mail address is: mkadin@rwmc.org

We look forward to seeing you online.

Sincerely,

Miss Nikki Thomason
Santa Rosa, California, USA
(Dev. LyP 1996; Dx 1998)