This is the homepage for an international support group formed in 1998 for adults and family members of children who have a very rare lymphoproliferative disorder called Lymphomatoid Papulosis (LyP).


LyP is now generally recognized as a form of CD30+ T cell lymphoma (CTCL). CTCLs includes Mycosis Fungoides (MF), Anaplastic Large Cell Lymphoma (ALCL), LyP and borderline cases. LyP and MF form a spectrum of diseases, with LyP being considered the least aggressive variety (while it is a chronic condition, it is not life threatening).


Please note that our list is also open to those who have both LyP and MF or ALCL. If you DO NOT have LyP, you will want to join Judy Jones' support group, which is run by the Cutaneous Lymphoma Foundation (CLF).

Send your e-mail to: judy@CLFoundation.org


We are pleased to anounce that the Cutaneous Lymphoma Foundation has produced a pamphlet for us called LyP Fast Facts. Please go to the link below to order yours today:
http://www.clfoundation.org/publications/order_form.html


**Important** Please join us in helping current and future LyP patients worldwide by joining Dr. Marshall Kadin's LyP Registry at Harvard University in Boston, MA (you don't need to travel to New England to particpate). By doing so you will be helping to advance knowledge about LyP.

Send your e-mail to Dr. Gomez at mgomez1@bidmc.harvard.edu

Please include your postal mailing address, best time to be reached by phone and permission to discuss your situation via e-mail.

Dr. Kadin is the Chief of Dermatology at Roger Williams Medical Center (which is associated with Boston University) in Providence, Rhode Island.

Dr. Kadin's e-mail address is: mkadin@rwmc.org


We look forward to seeing you online.

Miss Nikki Thomason
Santa Rosa, California, USA
(LyP Dx 1998)