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LyPSupport · Lymphomatoid Papulosis (LyP)

Group Information

  • Members: 727
  • Category: Cancers
  • Founded: Apr 29, 1999
  • Language: English
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Activity within 7 days:

3 New Members - 4 New Messages

Description

An international support group (formed in 1998) for adults and parents of children who have a very rare lymphoproliferative disorder called Lymphomatoid Papulosis (LyP). LyP is now generally recognized as a form of CD30+ T cell lymphoma (CTCL). CTCLs includes Mycosis Fungoides (MF), Anaplastic Large Cell Lymphoma (ALCL), LyP and borderline cases. LyP and MF form a spectrum of diseases, with LyP being considered the least aggressive variety (while it is a chronic condition, it is not life threatening).

Please note that our list is open to those who have both LyP and MF or ALCL. If you DO NOT have LyP, you will want to join Judy Jones' support group, which is run by the Cutaneous Lymphoma Foundation (CLF).
Send your e-mail to: judy@CLFoundation.org

We are pleased to anounce that the Cutaneous Lymphpma Foundation has produced a pamphlet for us called LyP Fast Facts. Please click on the Related Link in the box below to order yours today.

**Important** Please join us in helping current and future LyP patients worldwide by joining Dr. Marshall Kadin's LyP Registry at Harvard University in Boston, MA (you don't need to travel to New England to particpate). By doing so you will be helping to advance knowledge about LyP.
Send your e-mail to Dr. Gomez at mgomez1@bidmc.harvard.edu
Please include your postal mailing address, best time to be reached by phone and permission to discuss your situation via e-mail.

Dr. Kadin is now working with the Dermatology Department at Roger Williams Medical Center in Providence, Rhode Island. His new e-mail address is: mkadin@rwmc.org

We look forward to seeing you online.

Sincerely,

Miss Nikki Thomason
Santa Rosa, California, USA
(Dev. LyP 1996; Dx 1998)

Message History

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec
2008 126 232 211 123 16
2007 94 81 131 85 99 114 79 128 190 148 77 106
2006 179 148 212 103 227 108 59 26 65 73 180 136
2005 125 131 145 118 136 94 137 122 106 41 51 103
2004 94 149 176 130 204 77 201 174 102 113 100 125
2003 167 101 119 116 147 125 172 157 65 120 96 67
2002 127 120 15 81 293 86 151 176 283 136 138 120
2001 248 120 89 204 220 317 159 102 123 89 86 36
2000 349 178 183 185 166 104 141 70 251 135 189 125
1999 56 109 169 136 303 177 214 238

Group Email Addresses


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