Thanks for this info., Suzanne! ! Would a vaccine help those of us who already
have celiac? Or is it a preventative thing? (If you know).

suzannefrieder <suzannefrieder@...> wrote: Hi Everyone,

I've been wanting to share with everyone some tidbits of information I
learned at the Conference on May 20th, but have been so busy, I haven't
had a chance.

So here goes, and those who were at the meeting, please feel free to
chime in with what you remember.

Hat's off to Elaine Monarch, and all of those involved, the meeting was
very successful. We had the best of the best in speakers in the field
of Celiac Disease and it was well organized. The price was worth it.

We don't absorp fructose, so it could cause irritable bowel syndrome.
So if you have a case of IBS, check to see if there is fructose in what
you ate. Not the case for sugar, by the way. The fructose turns to
fat in our bodies. If you have a hard time products Kinnickkinnick
products, that could be the reason.

Celiac Disease is most prevalent in North Africa, not Northern Europe,
as most of us have come to believe. In the Sahara, the numbers are 1
in 18 with Celiac Disease.

The gene for Celiac Disease is the same as Childhood Diabetes. And we
need to genes for Celiac Disease.

There is a correlation between Cholesterol and Celiac Disease. 65% of
women their total cholesterol is less than 150. The same is true for
75% of men. But I believe that information is part of an Italian study
and we should be suspicious of Italian studies. For those who were at
the meeting, it is an Italian study which came up with the idea that
Celiacs have high foreheads.

We should have blood tests every year which include iron and thyroid.
We should have a pneumovax every five years. And when we find a
dietitian who knows more about Celiac Disease than we do, we should
visit that person once a year.

Risotto has boullion in it so make sure it is fresh w/ no boullion.

Babies and stressed mothers have fewer bacteria. A baby accumulates
bacteria one week after delivery. What I understood Michelle Piezak to
say is that you are more susceptible to triggering the Celiac gene with
lack of bacteria. Most Vitamin K comes from bacteria.

Not all probiotics are good because they are not regulated by the FDA.
Live bacteria are the best.

Michelle Piezak is putting out a CD on Celiac Disease. She also has a
web site www.glutenfreemd.com 866-963-9372

Last but not least, Dr. Bob Anderson from Austrailia came to announce
that he has been working on a vaccine. It's been in development for
several years and Oxford University in England funded the 1st million
for the study. Dr Anderson is looking for another million. Austrailia
matches the funds. He said that most likely the vaccine will come out
of Europe or Austrailia, and it won't necessarily be in the U.S. So
either we will all be hopping on a plane to Austrailia or wait until
the U.S. follows! Although I didn't understand Bob Anderson to say
this, many times the U.S. follows with research and development after
Europe begins the process. Wouldn't that be nice? I personally wasn't
able to stay to hear Bob Anderson's presentation because I had to make
a plane to San Francisco, but I had some time to talk with him, as I
picked him up at the airport.

Suzanne

















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