I was diagnosed last year at Mayo, had my right kidney autotransplanted, that was the best, no pain there. But my left kidney is so scarred down from stone...
Hello. My name is Stepheny. I'm 35 and I got diagnosed with LPHS about 2 years ago. Like most people I encountered lots of ER doctors and even a urologist...
I am not sure if I am sending these posts right or not, so please bear with me. I'm so relieved to see others out there still posting to this group...this is...
Hello again,  You are my daughters age. I am very sorry that you are suffering greatly. I do understand completetly how you feel. The pain is so hard...
Hi Erica, I am 22 and live in Scotland in the UK and I also have LPHS. Unfortunately over here it is a very unknown illness so I was diagnosed and then...
Hello Erica,  My name is Melanie. I also joined to find others like myself. I have not been official diagnosed by a Specialist, but by my doctor... I have...
My name is Erica, and I have LPHS. I was diagnosed by the Mayo Clinic in 1993 (or close to it). I have been out of remission for 10 years. I just bought a...
your story is so much like my daughters. I got chills reading it. I don't know any Dr.'s in N NJ but DR LAWRENCE WEISBERG is at cooper medical center. He...
Hi Everyone, I wanted to reach out and try to connect with others who suffer from LPHS. Here's my story. About 2 years ago I spontaneously started passing...
williamsallison
trouble78@...
Sep 4, 2008 11:19 am
33
Hi I am sorry you are going through this. It took 4 years for my daughter to get the right diagnose. She has had 10 operations mostly for her kidneys ad none...
I had hysterectomy last Dec. for heavy bleeding (17 days a month) and Dr. said he didnt think it would cure the chronic upper flank pain but would help with...
Hi all I have been battling a terrible undiagnosed disease for 6 years now and know I am not crazy even though my Doctors are trying to suggest it. I am sound...
Hi how is everybody Here you can find useful advices , articles , tips and programs to lose some pounds quickly http://www.tipsweight-loss.com We're waiting...
Hi So sorry to hear that you are still having trouble getting doctors to acknowledge you have a real disease. It took my daughter 3 years, but now she is...
Hi everyone, I have been dealing (struggling) with this condition for over 5 years now but only got a diagnosis last year. I am 21 and live in Scotland, UK. My...
HI, I too have devolped many strange allergies over the last few years. As a child I wasn't allergic to anything and now I am allergic to latex, bleach, any...
Hi No we haven't tried the nuvaring yet. Her doctor gets nervous about some new medicines because she is allergic to so many. Its really weird, she never had...
Hi Pogz, I was reading your post about your daughter's troubles with birth control. I know we've talked briefly about this before, but has she tried the...
Hi Sorry I took so long to answer. My daughter started with the LPHS symptoms before she went on the Pill. She was put on the patch to control ovarian cysts....
Hi Katie, I read your post regarding birth control. I am not on the pill or patch, but am on the Nuvaring. I have been on all types of the pill but the...
Hi, I read your post on birth control and I was wondering: is it the pill you're talking about? I've come across this a couple times. No one can connect our...
katiegiffin
katiegiffin@...
Jan 8, 2008 2:41 pm
21
Hi Betsy, I live in New Orleans,LA and thank you for the reply and the information. I am 35 years old and am seeing a nephrologist. When he was taking my...
My daughter has had almost everything that you are experiencing. WE Finally found a doctor in NJ. His name is Weisburg. He works out of Cooper Medical center....
I have a history of kidney stones that began about 3 years ago but have been suffering from lower right back pain for longer than that. I orginally was told...
I wanted to post this because for any of you out there suffering with LPHS, this is worth a try. My daughter's kidney doctor took her off her birth control...
mpavey0115
mpavey0115@...
Jul 22, 2007 12:37 am
17
My daughter was finally diagnosed in April of this year. It took 3 1/2 years to get the diagnosis. We went to Dr. Lawrence Weisberg in Cherry Hill NJ. Now...
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