Hi Pogz, I was reading your post about your daughter's troubles with birth control. I know we've talked briefly about this before, but has she tried the...
Hi No we haven't tried the nuvaring yet. Her doctor gets nervous about some new medicines because she is allergic to so many. Its really weird, she never had...
HI, I too have devolped many strange allergies over the last few years. As a child I wasn't allergic to anything and now I am allergic to latex, bleach, any...
Hi everyone, I have been dealing (struggling) with this condition for over 5 years now but only got a diagnosis last year. I am 21 and live in Scotland, UK. My...
Hi So sorry to hear that you are still having trouble getting doctors to acknowledge you have a real disease. It took my daughter 3 years, but now she is...
Hi how is everybody Here you can find useful advices , articles , tips and programs to lose some pounds quickly http://www.tipsweight-loss.com We're waiting...
Hi all I have been battling a terrible undiagnosed disease for 6 years now and know I am not crazy even though my Doctors are trying to suggest it. I am sound...
I had hysterectomy last Dec. for heavy bleeding (17 days a month) and Dr. said he didnt think it would cure the chronic upper flank pain but would help with...
Hi I am sorry you are going through this. It took 4 years for my daughter to get the right diagnose. She has had 10 operations mostly for her kidneys ad none...
Hi Everyone, I wanted to reach out and try to connect with others who suffer from LPHS. Here's my story. About 2 years ago I spontaneously started passing...
williamsallison
trouble78@...
Sep 4, 2008 11:19 am
35
your story is so much like my daughters. I got chills reading it. I don't know any Dr.'s in N NJ but DR LAWRENCE WEISBERG is at cooper medical center. He...
My name is Erica, and I have LPHS. I was diagnosed by the Mayo Clinic in 1993 (or close to it). I have been out of remission for 10 years. I just bought a...
Hello Erica,  My name is Melanie. I also joined to find others like myself. I have not been official diagnosed by a Specialist, but by my doctor... I have...
Hi Erica, I am 22 and live in Scotland in the UK and I also have LPHS. Unfortunately over here it is a very unknown illness so I was diagnosed and then...
Hello again,  You are my daughters age. I am very sorry that you are suffering greatly. I do understand completetly how you feel. The pain is so hard...
I am not sure if I am sending these posts right or not, so please bear with me. I'm so relieved to see others out there still posting to this group...this is...
Hello. My name is Stepheny. I'm 35 and I got diagnosed with LPHS about 2 years ago. Like most people I encountered lots of ER doctors and even a urologist...
I was diagnosed last year at Mayo, had my right kidney autotransplanted, that was the best, no pain there. But my left kidney is so scarred down from stone...
I havent seen any one post here at all. I've never even posted :) That said, I was diagnosed a few months ago and am constantly in pain. I try not to take the...
Does anyone have ABDOMINAL pain instead of "flank" (back) pain? That is the only thing right now making me somewhat doubt this diagnosis. Otherwise it fits me...
I do get from side pain...on my right radiating down into my groin area. But not just adominal pain alone. But, everyone is different in their pain. I...
I've only ever met one other person with LPHS. She and I were waiting to see Dr. Hebert. She was the first patient of his to be put on a morphine pump. She...
My pain is mostly in my abdomen, sometimes radiating around my back. Stabby/burny pain. I manage it with MS-contin (long acting morphine) and Dilaudid for...
How are you all doing? I have posted on this group site in the past,but it has been awhile...I'm afraid I'm not too stable at this time. I have been diagnosed...
I don't know of any support groups, but I just wanted to say you are the first person I've met who has even known what an autotransplantation is. I was...
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