LoinPainHematuriaSyndrome : LPHS

For those suffering with Loin Pain Hematuria Syndrome - a very misdiagnosed and mysterious kidney disorder

Re: Anyone know of an LPHS support group in Columbus OH? I get abdominal pain as well as flank pain. And when my kidneys are acting up, I get gas too! It's so hard to figure out what causes our different pains when Posted - Sat Nov 21, 2009 1:24 am	harleyeden Offline Send Email
Re: Anyone know of an LPHS support group in Columbus OH? I don't know of any support groups, but I just wanted to say you are the first person I've met who has even known what an autotransplantation is. I was Posted - Sat Nov 14, 2009 6:08 am	Skyesinger elf_on.pleasant Offline Send Email
Hey-looking for some advice...anyone still around?? How are you all doing? I have posted on this group site in the past,but it has been awhile...I'm afraid I'm not too stable at this time. I have been diagnosed Posted - Sat Nov 14, 2009 6:03 am	Skyesinger elf_on.pleasant Offline Send Email
Re: So how would you describe your pain? My pain is mostly in my abdomen, sometimes radiating around my back. Stabby/burny pain. I manage it with MS-contin (long acting morphine) and Dilaudid for Posted - Fri Sep 25, 2009 11:27 am	Andrea Goonan a_wolfrom Online Now Send Email
So how would you describe your pain? I've only ever met one other person with LPHS. She and I were waiting to see Dr. Hebert. She was the first patient of his to be put on a morphine pump. She Posted - Fri Sep 25, 2009 3:55 am	Amy Rapp arennerf Offline Send Email
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