would love to get back in touch with ppl on here so we can share experiences
about our children. please lets get back in touch.

Your daughter doesn't sound spoiled to me @ all.
She sounds, like a 4 year old version of mine.
Many same issues.
Mine cries over having to write spelling sentences. She is very fearful of going
beyond her comfort zone. She has SPD and I think that's part of it.

Alex

-----Original Message-----

From:  kiara pacheco <pachecokiara@...>
Subj:  Re: [LeadedKids] alexandra
Date:  Sat Oct 4, 2008 9:59 am
Size:  2K
To:  LeadedKids@yahoogroups.com

We are located in Minnesota, we haven't used pills or oils on her in awhile it
really didn't work i thought?...she does have good eating habits she chooses not
to eat fast food like (us) sometimes she gets fries, she makes oatmeal
everyday and she doesn't like red meat?he however gets her iron from bean and
such she does eat chicken so she gets her protein on the flip side of this coin 
she passes all the other bad signs in some way cause she is a very smart girl
she now is in 7Th grade she does have a nervous twitch about getting her work in
late missing assignments witch don't seem like a bad thing in children right?
but she goes to extreme and cries hysterically you can hear a scared real cry in
her  like the world is going to fall apart. naw that in itself makes it sound
like i have a spoiled kid? nope not at all and I'm not saying that cause I'm her
mom lol she always had a fear of the strangest weirded things her nerves would
be shot
  thinking of them...  where r u  and how is your child?

--- On Fri, 10/3/08, alex@... <alex@...> wrote:

From: alex@... <alex@...>
Subject: Re: [LeadedKids] alexandra
To: LeadedKids@yahoogroups.com
Date: Friday, October 3, 2008, 7:49 PM







where are you located?

We use Miralax for alexi.
Our Neurologist does see issues, but nothing we can do anything about.
Oil pills? Poor girl, now wonder!

How about Probiotic yogurt?
-----Original Message-----

From: "pachecokiara" <pachecokiara@ yahoo.com>
Subj: [LeadedKids] alexandra
Date: Fri Oct 3, 2008 2:58 pm
Size: 4K
To: LeadedKids@yahoogro ups.com

Hi. nope we've been to that kind of doc twice no luck they said she
looks just fine. i am glad about that but at the same time not really
im mad! very mad .. i gave up on the doctors saying anything new that
we dont know.. but then i also give up on my little girl so i keep it
in my mind everyday hoping they fine something else to say to help her.
Its a what could have been situation that i try not to think of to
much. i am going to take her in to check lvls again its been so long
though idk. anemia makes people tired maybe your little one is anemic
and cant help it? so yours also had constipation huh.. they had my
little one on.. adult enemas, some kind of oil pills stuff that stirs
in water lol my baby didn't get relief and scared to use the rest room
they were so big..sorry "gross" she now knows what she eats has a
effect of what comes out so at a young age has altered her own diet. im
so proud =)



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--- message truncated ---

my daughter does but has Nystagmus and Strabismus
had major eye surgery @ 3 years old to correct her head position.
-----Original Message-----

From:  "pachecokiara" <pachecokiara@...>
Subj:  [LeadedKids] question
Date:  Sat Oct 4, 2008 10:01 am
Size:  5K
To:  LeadedKids@yahoogroups.com

                   any other kids have bad vision and wearing glasses?



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--- In LeadedKids@yahoogroups.com, "krgunder" <krgunder@...> wrote:
>
> My son has recently started OT. We are using the brushing technique
and
> others given by our therapist. Has anyone else used OT to help
relieve
> the sensory stuff from lead? Aggresion, anger, anxiety? My son is
> almost ten. Is anyone else having more of those problems at home than
> at school? Does anyone have any other tips?
> we have aggresion,anger,anxiety here have had her talk to a therapist
but that didn't last long she was to young to understand i never tried
OT how is that working for you? we just kind of deal with it just
talking to her by our self.

My son has recently started OT. We are using the brushing technique and
others given by our therapist. Has anyone else used OT to help relieve
the sensory stuff from lead? Aggresion, anger, anxiety? My son is
almost ten. Is anyone else having more of those problems at home than
at school? Does anyone have any other tips?

any other kids have bad vision and wearing glasses?

where are you located?

We use Miralax for alexi.
Our Neurologist does see issues, but nothing we can do anything about.
Oil pills? Poor girl, now wonder!

How about Probiotic yogurt?
-----Original Message-----

From:  "pachecokiara" <pachecokiara@...>
Subj:  [LeadedKids] alexandra
Date:  Fri Oct 3, 2008 2:58 pm
Size:  4K
To:  LeadedKids@yahoogroups.com

                   Hi. nope we've been to that kind of doc twice no luck they
said she
  looks just fine. i am glad about that but at the same time not really
  im mad! very mad .. i gave up on the doctors saying anything new that
  we dont know.. but then i also give up on my little girl so i keep it
  in my mind everyday hoping they fine something else to say to help her.
  Its a what could have been situation that i try not to think of to
  much. i am going to take her in to check lvls again its been so long
  though idk. anemia makes people tired maybe your little one is anemic
  and cant help it? so yours also had constipation huh.. they had my
  little one on.. adult enemas, some kind of oil pills stuff that stirs
  in water lol my baby didn't get relief and scared to use the rest room
  they were so big..sorry "gross" she now knows what she eats has a
  effect of what comes out so at a young age has altered her own diet. im
  so proud =)



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|   Start a new topic
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Polls   |    Members   |    Calendar     --- message truncated ---

Hi. nope we've been to that kind of doc twice no luck they said she
looks just fine. i am glad about that but at the same time not really
im mad! very mad .. i gave up on the doctors saying anything new that
we dont know.. but then i also give up on my little girl so i keep it
in my mind everyday hoping they fine something else to say to help her.
Its a what could have been situation that i try not to think of to
much. i am going to take her in to check lvls again its been so long
though idk. anemia makes people tired maybe your little one is anemic
and cant help it? so yours also had constipation huh.. they had my
little one on.. adult enemas, some kind of oil pills stuff that stirs
in water lol my baby didn't get relief and scared to use the rest room
they were so big..sorry "gross" she now knows what she eats has a
effect of what comes out so at a young age has altered her own diet. im
so proud =)

my daughter was a year and half when we got her tested. her lead lvl
was 86 she is now 12 years old and still has effects of this lead
headaches, the constipation from it never went away and turned into
impacted bowels, she gets dizzy, nautious, to name a few. she broke her
wrist this summer now her joints hurt her even the other wrist is
painful? what gives is the lead in her bones re-appearing to say hello?
i know what they say in pamplets about effects of the lead checked them
right down the page but now what is there something we can do ? what do
i do when i take her to the clinic they say of yeah she looks healthy
fine just watch if your still concerned bring her back.. like i have co-
pays for a visit im paying answers now.. am i not looking for the right
tests i havent had her lead checked since after her hospitol stay to
get it removed and the all clear it was down to acceptable. is there
more tests i should know of ? besides the CAT scans and MRI for her
being clumsey and headaches that she has always had and they came back
normal  what are they symptoms for your children? and what do u do if
anything

for all those interested in later health effects of lead (and pesticides and
mercury, etc) please refer to the website below. I have also pasted the text
of the article at the end.
Kind regards
Elizabeth O'Brien

----- Original Message -----
From: "Ralph Scott" <rscott@...>
To: <leadnet@...>
Sent: Wednesday, June 18, 2008 6:12 AM
Subject: [Leadnet] "Is lead linked to mental decline?"


A June 15 news story that reviews some research on lead exposure in
childhood and mental decline later in life:

www.orlandosentinel.com/orl-leadbrain08jun15,0,3574316.story
----------
Ralph Scott
Community Projects Director
Alliance for Healthy Homes
50 F St., NW, Suite 300
Washington, DC 20001

phone - 202-347-7610
fax - 202-347-0058
rscott@...; www.afhh.org

Working for affordable healthy housing for all.

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www.orlandosentinel.com/orl-leadbrain08jun15,0,3574316.story
[LID 9565]

OrlandoSentinel.com
YOUR TIME: WELLNESS
Is lead linked to mental decline?
Some experts say long-ago exposure to the toxin adversely affects the brain
later in life, but more study is necessary.
Malcolm Ritter

The Associated Press June 15, 2008

Could it be that the "natural" mental decline that afflicts many older
people is related to how much lead they absorbed decades before?

That's the provocative idea emerging from some studies, part of a broader
area of new research that suggests some pollutants can cause harm that shows
up only years after someone is exposed.

The work suggests long-ago lead exposure can make an aging person's brain
work as if it's five years older than it really is. If that's verified by
more research, it means that sharp cuts in environmental lead levels more
than 20 years ago didn't stop its widespread effects.

"We're trying to offer a caution that a portion of what has been called
normal aging might in fact be due to ubiquitous environmental exposures like
lead," says Dr. Brian Schwartz of Johns Hopkins University.

"The fact that it's happening with lead is the first proof of principle that
it's possible," says Schwartz, a leader in the study of lead's delayed
effects. Other pollutants such as mercury and pesticides may do the same
thing, he says.

In fact, some recent research does suggest that being exposed to pesticides
raises the risk of getting Parkinson's disease a decade or more later.
Experts say such studies in mercury are lacking.

The notion of long-delayed effects is familiar; tobacco and asbestos, for
example, can lead to cancer. But in recent years, scientists are coming to
appreciate that exposure to other pollutants in early life also may promote
disease much later on.

"It's an emerging area" for research, says Dr. Philip Landrigan of the Mount
Sinai School of Medicine in New York. It certainly makes sense that if a
substance destroys brain cells in early life, the brain may cope by drawing
on its reserve capacity until it loses still more cells with aging, he said.
Only then would symptoms such as forgetfulness or tremors appear.

Linda Birnbaum, director of experimental toxicology at the U.S.
Environmental Protection Agency, says infant mice exposed to chemicals such
as PCBs show only very subtle effects in young adulthood. But more dramatic
harm in areas such as movement and learning appears when they reach old age.

Animal studies also show clear evidence that being exposed to harmful
substances in the womb can harm health later on, she says. For example,
rodents that encounter PCBs or dioxins before birth are more susceptible to
cancer once they grow up.

Studying delayed effects in people is difficult because they generally must
be followed for a long time. Research with lead is easier because scientists
can measure the amount that has accumulated in the shinbone over decades and
get a read on how much lead a person has been exposed to in the past.

Lead in the blood, by contrast, reflects recent exposure. Virtually all
Americans have lead in their blood, but the amounts are far lower today than
in the past.

The big reason for the drop: the phasing out of lead in gasoline from 1976
to 1991. Because of that and accompanying measures, the average lead level
in the blood of American adults fell 30 percent by 1980 and about 80 percent
by 1990.

That's a major success story for environmentalists. But work by Schwartz and
Dr. Howard Hu of the University of Michigan suggests that the long-term
effects of the high-lead era are still being felt.

In 2006, Schwartz and his colleagues published a study of about 1,000
Baltimore residents. They were ages 50 to 70, old enough to have absorbed
plenty of lead before it disappeared from gasoline. They probably got their
peak doses in the 1960s and 1970s, Schwartz says, mostly by inhaling air
pollution from vehicle exhaust and from other sources in the environment.

The researchers estimated each person's lifetime dose by scanning their
shinbones for lead. Then they gave each one a battery of mental-ability
tests.

In brief, the scientists found that the higher the lifetime lead dose, the
poorer the performance across a wide variety of mental functions, such as
verbal and visual memory and language ability. From low to high dose, the
difference in mental functioning was about the equivalent of aging by two to
six years.

"We think that's a large effect," Schwartz says.

Hu and his colleagues took a slightly different approach in a 2004 study of
466 men with an average age of 67. Those men took a mental-ability test
twice, about four years apart on average. Those with the highest bone lead
levels showed more decline between exams than those with smaller levels,
with the effect of the lead equal to about five years of aging.

Nobody is claiming that lead is the sole cause of age-related mental
decline, but it appears to be one of several factors involved, Hu stresses.

If so, it would join such possible influences as high blood pressure,
diabetes, stroke, emotional stress and maybe education level, said Bradley
Wise of the National Institute on Aging. Nobody knows exactly what causes
mental decline with age, he says.

Although the studies by Hu and Schwartz suggest lead is involved, Wise and
others say they don't prove the link.

"I think many things impact how we age, but I think right now it's maybe
premature to be giving lead a huge role in our age-related cognitive
decline," says Dr. Margit L. Bleecker, director of the Center for
Occupational and Environmental Neurology in Baltimore. Still, she calls the
lead hypothesis "a very interesting idea" deserving more study.

Others are more impressed.

"The new evidence from these studies should concern people" says
epidemiologist Andrew Rowland of the University of New Mexico. "These two
research groups are finding adverse effects on the aging brain at low levels
of lead exposure. More work needs to be done, but these studies are raising
important questions."




Copyright © 2008, Orlando Sentinel

The goals of the Inclusive Child Care Program are:

1. To help families of children with special needs find and keep appropriate child care while parents are employed or in post-secondary education programs;

and,

2. To help children be in inclusive child care settings with their peers.

The Program Provides a Supplemental Child Care Subsidy

• The subsidy helps meet child care costs that are higher because of a child’s special needs.

• Parents pay the provider’s customary fee, or a fee that is comparable to local child care rates. The subsidy is paid directly to the child care provider as a supplement to the parent payment.

• The subsidy pays for those things that are necessary to the child’s placement and that cannot be covered within typical child care rates.

• The amount is different for each child. The subsidy is based on the individual needs and resources of the child, the family and the child care setting.

Examples:

• The subsidy offsets cost to the provider of caring for a smaller number of children.

• The subsidy pays for an extra person in the child care setting at certain high need times (such as meals or transitions).

• The subsidy helps pay for a ramp so that a family child care provider’s setting is accessible to a child in a wheel chair.

An Individual Child Care Plan

An individual child care plan identifies additional supports to the child care placement (training or consultation for the provider, back up options, etc.)

Eligibility

Child:

From birth through 17 years of age;

Has a physical, developmental, mental, emotional, behavioral, or medical disability;

and

Requires extra supports or accommodations to be in child care.

These are supports that cannot reasonably be paid for within typical child care rates.

Family:

Has an income less than 85% of Oregon’s median income.

For a family of 4 this is $4,592 per month or $55,107 per year. The amount goes up or down depending on family size.

Parents need child care to be employed or to attend post-secondary education programs.

Child Care Providers

The child care provider may be a child care center, a registered family child care provider, or an individual. Providers must comply with Child Care Division registration and certification rules. Providers who are exempt from those rules must agree to undergo a criminal records check and comply with health and safety requirements.

To make referrals or to obtain more information contact:

Portland: 971-673-2285

Statewide: 1-866-837-0250

Mailing Address: 600 NW 14^th Ave., Suite 100, Portland, OR 97209

Email: inclusivecc@...

The Inclusive Child Care Program is a program of the Oregon Council on Developmental Disabilities in partnership with the Oregon Employment Department Child Care Division. The Child Care Division provides supports for the program through the federal Child Care and Development Fund.

3/28/08

 

 

HBO is showing Autism: The Musical online for free this week: not sure how long this will last.

 

 

http://www.hbo.com/docs/programs/autism/video/

 

AUTISM: THE MUSICAL follows the extraordinary acting coach Elaine Hall,
five children with autism, and their parents as they heroically mount a
full-length original stage production. Through trial and error, tears
and laughter, these incredible families learn to communicate their
feelings in song and performance, finding solace and joy in the act of
creating.

A veritable feast of astounding breakthroughs, this spellbinding film
offers a full-throated celebration of kids living with an increasingly
prevalent disorder. Director Tricia Regan vividly captures the
individual personalities and problems of each child, from precocious
Henry who talks a mile-a-minute about dinosaurs, to Neal, a sensitive
and articulate boy who nonetheless struggles to speak at all. The
parents, too, are fascinating studies in unconditional love, especially
Elaine, the mastermind behind the musical and mother of Neal.

A consciousness-raising and empathetic portrait of children and their
families living with autism, AUTISM: THE MUSICAL celebrates the spark of
humanity in each of us. "Moving, dramatic, therapeutic and unburdened by
reliance on talking heads" (Variety), this film will change the way you
look at autism.



*Full Schedule:

http://www.hbo.com/apps/schedule/ScheduleServlet?ACTION_DETAIL=DETAIL&FO
CUS_ID=647488

 

hi can anyone help me with some information please in 2004 my daughter
who was 4 yrs old was diagnosed with elevated lead levels they were at
38 she is 8 years old now an has various special needs but no diagnosis
plus we live in the uk so lead poisoning is unheard off these days so
no one has given me any info help please

When young myself and four of my siblings lived in Pt. Pirie, S.A. As
I understand from what I am reading Pt. Pirie has the World's biggest
Smelters.  I happened to contact Cathy Phipps, Director of the
Environment Section on the Council at Pt. Pirie. (*) I don't intend to
run ahead and make any assumptions but if anyone has anything they
find that is particularly related I'd love to hear.

I will be 49 this year.

For a short time in 67 -68 (still checking) my siblings 3, 4, 5, 7 (me
8)(# can be out slightly)spent time in a home across from slag heaps
with uranium enrichment ponds near the end of The Terrace. *Cathy let
me know that this area was the worst contaminated area lead wise and
would "never" be built on again. That house one door up from the end
was demolished.
In 70 back again around the corner in Francis St. we lived again for a
short while ages 6, 7, 8, 10, 11. This house and the shop in the
street has also been demolished. There is more details but I don't
want to put unnecessaries.

In 71 we moved to Mt. Gambier (non mining).. my mum developed un-
diagnosed for a few years thyroid condition which she now takes meds
for. My youngest sister was diagnosed with epilepsy and prescribed
phenobarb (?spel?) - she later "grew" out of this.  She has always
been noted as aggressive and there are other problems associated that
I would prefer to discuss offline.  We both agreed 10 years ago that
we have had labels put on us - but do not agree with what we have been
told (as yet!).

In 79 I moved with my new husband to Broken Hill NSW for 8 years.  One
of the homes we rented before we moved to our bought home was in
Gaffney Street where slag heaps are and I notice that either 24 or 26
people in that street have affidavits regarding damage to their
children.
In 81 we had moved to our new home and in 84 I had my first child.  I
had a baby girl with extreme brain damage and it was put as my
platelet skin destroying that of the child who carried the father's
type.  In 86 I had my second child with the same condition though only
mild damage which they said was as a premi babies and should clear by
3 months which in scans we were told had. My first child died at 19
here in Qld through the severeness of which the brain damage had left
her.  Though I question pretty well most things I was told in 84 that
I had a factory so to speak that was destroying platelets in my
blood.  I have also developed like my younger sister a nervous system
condition.

I may very well have missed pertinent information here - if you can
help..great.  I am doing research as much as I can to check on
something that has been on my mind for a long, long time.
Regards,
Deborah

http://www.raidersnewsnetwork.com/full.php?news=13277

http://www.raidersnewsnetwork.com/full.php?news=13277

hi to all parents with children effected by heavy metals.

as you know heavy metals damage a childs neurological function and many kids
with heavy metal exposure may have sensory processing disorder.  through our
occupational therapist we have come accross a great book called 'the out
out-of-sync child has fun'.  it has really helped our son get more joy into his
life (and ours!!) by providing great ideas on physical activities that help him
be balanced.  there are some great calming activities that we find useful.

maybe your child would benefit from this book too.  if so, i'm very happy.

regards, lisa ferguson in newcastle, australia.

Hi everyone,
   Children in Nigeria are unduly exposed to lead and up to 75% of
Children in Nigeria have blood lead above the recommended unit.(10
microgram per dl, 96% of paints produced in Nigeria have lead above
the hazardous level, Leaded gazoline is still in use in Nigeria.But
the funny thing is that the general populace is neither knowledgeable
about lead nor aware of the it's health implications. Even among most
health care practitioners lead is an unheard of disease.The government
is not doing anything about this worrisome situation eating deep into
the future of the country in whose handsit's future lies.This is the
pathetic situation of Nigerian children.

hi alexandra,
thanks for the reply, sorry it's taken so long to reply.  you must be so angry
at the process of business & gov't etc.  i know i would be furious.  hope it's
all going ok.  regards, lisa.



> Alexandra <alex@...> wrote:
>
> Lisa,
>
> G'day! ( My in laws are headed to your fantastic Country in a week.
> I'm so jealous!)
>
>
>
> That was me. My daughter Alexandra was the child that the doctors
> found a Lead deposit in her left femur.
> They found it when they did x-rays during her second round of
> chelation in hospital. Her Lead levels were SO high that we had to use
> medical intervention.
>
> Her story and the x-ray was supposed to be included in the 2006
> October issue of National Geographic photo essay by Peter Essig on
> toxic enviroments around the world which included a Lead smelting town
> in AUS, but they used a pathetic photo of her younger sister who also
> had a measureable level of Lead, but not even close to little Alex's
> levels because it made for a more sympathetic photo. The photo of my
> youngest (Christine age 4 at the time) was staged. He made the her
> stand next to my neighbor's house and made it look like she played in
> Lead chips that has fallen from the neighbor's home.(neighbor was in
> full repainting mode of his home and missed cleaning some scraps)I
> thought at least THAT magazine would be ethical enough to tell the
> truth and use the right kid for the photo!
>
> I live in a Western Cleveland suburb called Lakewood. I am actually on
> Lake Erie. IT is A LOT prettier than all the worldwide jokes about
> Cleveland(I moved here from San Diego) I have home built in 1911.
> Cleveland is home to Sherwin-Williams the largest manufacturer of
> (Leaded) paints. In 1972 leaded paint was finally outlawed by the
> Environmental Protection Agency. I know for a fact that most painters
> still used all their Lead paint supplies until well near 1980. The
> paint stocks were not thrown out, but still used until new paints were
> reformulated minus the lead. Cleveland refused to join a Class Action
> Lawsuit against Sherwin Williams because of politics. Cleveland has
> the 3rd highest rate of Lead poisoning in the country behind New York
> and Chicago. Because of how hard the local economy has hit this
> region, the Mayor of Cleveland won't get involved because Sherwin
> Williams employees thousands of local Clevelanders and provides pays
> millions in local taxes....much more important to Mayor Frank Jackson
> than a little white child in a moderately well to do suburb who had
> the highest Lead levels in Cuyahoga county in 10 years in 2002 and who
> was the poster child for the Cleveland Health Department's "Lead Safe
> Living Campaign" in 2006...
>
> Alex has the Lead deposit and neurological damage.
>
>
> Sorry for the novel!
>
> Alexandra in Lakewood
>
>
>
>
> --- In LeadedKids@yahoogroups.com, "lisajamieferguson" <Lisajamie@...>
> wrote:
> >
> > can't remember which message it was, but someone mentioned their
> child has lead left in
> > their femur.  sorry to hear this.
> > do u mind if i ask how you could tell this?
> > many thanks, lisa in newcastle, australia.
> >