Sharon and Jill, Thanks to both of you for your responses. I asked about the Benzo treatment for kids because I use a low-dose Benzo for anxiety, which helps...
Hello~ I am new to this whole thing and was kind of searching the internet for any kind of support groups I could find for Landau0Kleffner Syndrome. I have a...
... Hello, Im not sure if Im responding to this twice or not! Im new to this thing and not 100% sure how it works! So forgive me please! I wanted to answer...
Hannah has been on clonazepam (type of benzodiazapene) for about 3 years. She is .25 mg at night only. It has helped her immensely. I haven't seen any adverse...
Hi - Hannah responded to steroids like your daughter has, but be careful to not stop altogether you must do a really long slow wean to maintins the gains and...
Hi, With my youngest son, our neuro is the one who wanted to use steroids. He has been using either steroids or depakote with his LKS patients and is very...
Hi Steph, How long has your youngest been on steroids and how long will he be on them do you think? BTW for Suzanne-- this is only my personal opinion, but if...
Hi, Welcome to the board. I'm Sam, mum to Tai who is now 8. Tai also lost all language, and started the steroid treatment when he was 3 and a half. His EEG...
The protocol is 2mg/kg/ day. At the time she weighed 48 lbs and started out at 40mg. As I understand, it is the standard protocol for steroid therapy. Yes this...
I think that was the same as our protocol but we started at 11mg per day and were on that for 9 months and then started weaning. We gave it once a day...in...
Martha, Just so I understand...Hannah was on steroids for 9 months over 3 years ago but still takes Clonazepam and she is almost 12. Were the steroids for...
Hannah's neuro prescribed it, we go to Cleveland Clinic. But since we live 2 hrs from Cleveland our pediatrician monitored her blood pressure, bloodsugar and...
Sharon - Yes, she was not diagnosed until she was 7. We think she started with this around 4.5 years old but hers was a slow regression and finally lost all...
Hi Guys, Here is a website I found helpful in explaining prednisone http://www.aheadwithautism.com/reallife.html I'll post to the links section too. Stacey...
Sam- A couple weeks ago I had asked some questions about my daughter Libby, And we had talked about how Libby needed an EEG. Well last week I talked to the...
Meg - I don't think a 1 hr EEG is going to tell much. THE child has to sleep to tell if the pred is getting rid of the spiking. It would be hard to get much...
Hi Meg, I agree with Martha. The EEG has to be a sleeping one, and overnight is better. I would insist on at least a nap EEG, when the child is deprived of...
" She went from 42 to 104 lbs (at 7 yrs old) in a matter of 4 months" This is not a typo, right? My son is 6 and 42 lbs and I just cannot imagine him tripling...
Yes, it has been 3 years so the specifics are fuzzy but all she wanted to do was eat. Something that really helped was giving her zantac. We didn't start that...
I mispoke(or miswrote). It was 11 ml's. I get my ml's and mg's confused. Still seems we were on alot less than you. I'll have to do some measurement...
Yes we saw improvement in bahvior right away and then in about a month or so she started talking but she still felt miserable from the weight gain, I guess....
Is stomach sensitivity a side effect of that med in particular, or steroids in general? I'm asking because ASD kids tend to have GI problems, and the GI docs...
yes i felt that way with depakote. it was log brain fog...he was so out of it but we did get a language jump. To: LandauKleffnerSyndrome@yahoogroups.com From:...
Wow, this board is moving so fast! I barely hav time to read everything and reply to the things I want to! Thanks everyone for posting such great info. We have...
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