... Yes my son has started to studder I asked the speech pathologist she said it was word retreval but it is hard to watch, does he still do and what meds is...
Sent: Monday, February 09, 2009 7:45 PM Subject: Re: Please pass on and please make immediate calls and send emails Dear Listmates, fellow advocates and...
Sent: Monday, February 09, 2009 7:45 PM Subject: Re: Please pass on and please make immediate calls and send emails Dear Listmates, fellow advocates and...
Sedona has had the g-tube (PEG) for 3 weeks and last week and this week started vomiting with all food taken through mouth. I thought that she was over eating...
When she had pnemonia she would gag and vomit. She now has had the peg tube for 3 weeks and the last 2 she has vomited when eating by mouth. She ate a small...
Does anyone go there? My son has LKS, confirmed by two epileptologists. He needs to be followed by an epilepsy center, so I was just wondering what people...
We have gone there. We traveled from Maine to see Dr. Bousaui (sounds like boo swha, I know I spelled it wrong) He didn't have a very good bedside manner, but...
We see Dr. Bourgeouis at CHB - and are very happy with his care. He isn't warm & fuzzy -- but his office is fantastic. He calls personally to follow-up on...
IDEA Stimulus Funding Retains Existing Language House education aides say that the $12.2 billion for special education funding in the stimulus package will...
My son 9 1/2 was diagnosed with LKS when he was 3 1/2 by the dr's at childrens using a BEAM study. He first tried Lamictal but is currently on depakote. We...
We have been going there for 6 years. We used to see Dr. Duffy. He was the first to make sense of Alistair's language loss. We have been very happy with his...
Hi, Please share your story with us. I think we all can benefit from your experiences. How did puberty affect your child's language and social skills? Thanks...
Hi, we are considering this protocol for my son who has a variant of LKS. If anyone has tried this please send me any feedback. Thanks! Stacey Two children...
we've never done the IV but this is our second time doing oral. the last time was about a year ago, but the dosage wasn't as high and Sarah was on it for a...
We did the oral prednisone at 2mg/kg and the clonazepam. It brought back Hannah's speech. She did not have any significant regressions after a long slow wean....
Thanks everyone for your responses. Martha-how long was your slow wean? How long were you on the steroids in total? How old was Hannah when you started the...
My daughter who will be 5 years old next month. Has the language skills of a 2 year old and scattered scores everywhere else. Her behavior is erratic, she does...
Hi, I am new to all this, and we are seeing a neurologist tomorrow to discuss steroid treatments. I need to get informed QUICKLY so I can ask all the relevant...
My daughter was dx at 6yo -- and the NP who dx her with lks said that the reason she was not dx with autism was the clear history until the age of 5y9m when...
Hi Katie, Its great that you're getting a second opinion. You need to see someone who knows what they are talking about. If she has electrical discharges, then...
Hi Suzanne, My son has LKS, diagnosed at 3 years old. He started off on Prednisolone which quickly cleared his sleep/daytime EEG so it was normal with no...
Sam- I posted on here a few months ago about my daughter Libby I dont know if you remember or not but she has been on prednisone since nov 08. And we havent...
We started the pred in April and started to wean in September. It took from sept to about the end of december to wean. All in all about 9 months. She was 7...
Hi Megan, Of course I remember you. This is what this board is for. In the early days I had thousands of questions like you. We are all here to try and help...
Does anyone have problems with whinning? Constant complaining? Language is taking very long to say. She stands there and you see her thinking of what she...
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