my son as well.. Its like he is trying to remember how to put the sentence in order. So I guess he doesn't stutter the actual word, but he does "stutter" the...
She was diagnosed with LKS almost 9 years ago. If anyone has questions about progression of this disorder from my experiences, please let me know. I am only...
Absolutely - please share your experience. Each child is different and what helps with one may not with another. Maybe your experience will be a blessing to...
Hello. This is all new to me and we are still in a diagnois stage. On December 19,2008 My healthy above average son changed completely. A child how has been...
My daughter has a varient of LKS. She is not a case book child and she had a cortisol test and was seizure free for 10 days. She has never been seizure free....
Hi there all this is pretty overwhelming we were just diagnosed a couple of days ago. We have been through a tons of tests MRI EEG and blood work and then sent...
... have just been diagnosed and are going thru the stages of medication and praying it works for him, he is 4 1/2 and still has his speech it is just a bit...
where in Pa are you?? We live in western PA. I highly reccommend Dr. Gupta at cleveland clinic. He saved my daughter. We were going to Children's of Pittsburgh...
We live in Central Pennsylvania, Williamsport. Whereis Cleveland Clinic? ... Dr. ... for ... developmentally ... recovery ... and ... stage. On ... completely....
Hello, My son was diagnosed at 3 years old after losing all language. I wonder why you don't agree with the diagnosis? It sounds just like LKS to me. I totally...
Hi Jenifer, My son had success with steroid treatment (Hydrocortisone). The side effects weren't great, but by this time he had no language whatsoever, it was...
Wow - Williamsport is a long way from here. You are about 4 hrs away from me (stoneboro, Pa, which is halfway between Erie and Pittsburgh) I think, and then...
Hi there I would love to hear your story about how your daughter is doing now. there is not alot of info out there about the progression of the syndrome,...
This mess just gets more frustrating. I didn't hav much faith in medicine and I have lost that. Geisinger who gave us the diagnois of Landaukleffner is now...
OMG! If it is helping then DO NOT take him off. Insist that he stays on for a longer period. Why are they questioning the diagnosis? Did his EEG show the spike...
Yes - as Sam says!!! Do not take him off quickly it may not allow you to get control in the future. Many kids have only one chance at steroids. How can they...
Apparently Landau kleffner syndrome has a specific eeg pattern. My son doesn't have the pattern. After My appointment on 1/19 I was told that he just had a few...
who are you seeing at Hopkins? That's where I take my daughter for the LKS. She's medicated with Keppra, Lamictal, and Paxil as well as Risperdal for the...
... Yes my son has started to studder I asked the speech pathologist she said it was word retreval but it is hard to watch, does he still do and what meds is...
Sent: Monday, February 09, 2009 7:45 PM Subject: Re: Please pass on and please make immediate calls and send emails Dear Listmates, fellow advocates and...
Sent: Monday, February 09, 2009 7:45 PM Subject: Re: Please pass on and please make immediate calls and send emails Dear Listmates, fellow advocates and...
Sedona has had the g-tube (PEG) for 3 weeks and last week and this week started vomiting with all food taken through mouth. I thought that she was over eating...
When she had pnemonia she would gag and vomit. She now has had the peg tube for 3 weeks and the last 2 she has vomited when eating by mouth. She ate a small...
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