Hi Lucy, What a complicated history! And Nicholas is lucky to have you as his mum, you have worked so hard to help him. The only thing that helped Tai was...
I also thought the delta wave CD sounded interesting! I found it on Amazon, so hopefully we'll have it in a few days as there was a UK supplier. Fingers...
Hi lucy. I wanted to know which type of omega 3 tablets do you use. My daughter spits out each type I've tried. Your story is both interesting and inspiring as...
Hi guys, I think the CD does help. I originally got one after being in a really bad car accident. I was a couple of years out from the accident still dealing...
Hi, We use the Gummy Omega 3s from Target (I think they are at Costco too). They are made by Lil Critters and have strawberry lemonade, cherry-ade and...
Thanks for all the info!!! We also believe in the power of prayer and fasting. I will try the products you suggested as variety is an issue. Sent from my...
It has been quite a while since I have posted anything on this group. So, I am not sure anyone would remember my son Garrett's story so I would like to give...
HELLO OUR DAUGHTER was on depakote sprinkles from age 3yrs- 6 yrs her LKS went into remission then at 9 it returned we tried KEPPRA no success, put her back...
Hi, We went and saw a new epi at childrens in denver today. My son is 6 and has LKS. Anyways. In 2 years his sz's have never been controlled. The ESES is...
hi wrenb.    we have tried the diazipam and after it he started to get the crying fits. it stopped the night fits but developed awake fits and aggresive...
I haven't posted in so long. Quick up date my son lost all speech @ 18 months. He is now 3 1/2 y.o. he has developed behavior issues and had a one tonic conic...
Hello, I know its not common, but I have heard about a girl who had a 3 day EEG, and only then did the activity show up. May be worth considering? Otherwise, I...
HI, I agree with Sam - try the meds. Nicholas never had a documented seizure (though there may have been 1 or 2) just the abnormal EEG and the language loss....
Hi Everyone! Looks like it has been a little slow on here lately and I wanted to check in with all of you. At my son's overnight EEG, he didn't have a seizure...
In our experience, Topomax was the worst drug we tried..Zander also developed an increase in absence seizures, became very sensitive, sobbing uncontroably, and...
Jennifer, we had a terrible time on lamictal as it made Gregor a lot worse and caused new kinds of seizures. He was much better off it. We were advised not...
Sedona has been in the Hospital since Thursday. She went into statis seizures at school. She had 25 drops in 1.5 hours. They gave her 6mg of Ativan and still...
Gina - I am soooo sorry to hear of this!! Sedona was doing so well. Last fall Hannah had something similar happen. She was having those myoclonics almost...
I'm a careseeker and I have found the ideal match on http://sittercenter.bravehost.com/, It is a really trustworthy site.they identify your family's needs...
I have been on this site a few times w/ alot of feedback and some helps. So I am asking anyone who has used vitamins or any special diets to let me know what...
My daughter is 5 1/2 and was diagnosed with LKS one year ago. She has been improving, but we tested her for food allergies as I had always wondered if maybe...
Hi Everyone, My name is Stacey and we recently found out my son Zachary may have LKS. Zachary is 4.7 years old and was diagnosed with PDD-NOS at 21 months....
Stacey- my daughter is LKS variant, she had normal development until around 4, and then very slowly over the next 2 years lost speech. She has a very unusaul...
Hi Martha, When you say high dose of steroids how high are we talking? Also, how long before you started to see results? How long did your daughter stay on...
Jill, Why is surgery being considered if the EEG is normal? Surgery won't bring back language. As long as the EEG is normal then the language has every chance...
Hi Stacey, LKS is often mis-diagnosed as autism. My son never had an outward seizure, just the spike wave activity. Also his speech gradually fizzled out, this...
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