excuse me. whom did you mean exactly by this message and who are you. ... From: matchdvcfriends <matchdvcfriends@...> Subject: [LandauKleffnerSyndrome] I...
This is dedicated to all moms of special children. I hope this encourages you as much as it did me. Many of you, I have never even met face to face, but I've...
Vitamins if you use them what and how much Our daughter is 11 and has been in regular ed getting a and b's. The past month she is talking excessively that she...
We're not using it now, but in the past we've used Yummi Bears Child Bright as well as fish oil. The bears have two bottles in a package - for am & pm - and...
I also give my daughter Omega 3 chews which is supposed to decrease seizure activity. I have no idea whether it helps or not. We use Life Fitness everyday...
Hi, Nicholas was just diagnosed today but we've been in the no man's land of unnamed disorder for about 4 years now and we've been fairly aggressive with...
Hi Lucy, Welcome to the group. Its great that you finally have a diagnosis. Its very common for this illness to be mis-diagnosed or not diagnosed at all. What...
Welcome- My daughter also had no diagnosis for a long time and I was very relieved to have a name to call her regression. Good Luck and this is a great place...
I understand how difficult it is. My son was in preschool when we found out and he will be starting first gratde this year. He doesn't speak but after he had...
Hey everybody!! Last Friday we had our regular EEG checkup, and for the last month Porcelain has been on Prof. Dulac's hydrocortisone protocol. (I also did...
Hi Andrea, That is great news. Tai's EEG has been clear for 3 and a half years now thanks to Dulac. He has been off the steroids since last August, so one...
Hi All! I am new and just wanted to introduce myself. My name is Jennifer and my son, Brett, is five years old. He was diagnosed with autism at 3. Brett met...
Hi Jennifer, Welcome to the group! Much of what you have described sounds just like my son Tai. He was 2- 3 when he started to lose language, had terrible...
hi jeniffer.we also tried lamictal befor the hydrocortizone for galal and i remember one of the neurologists say that lamictal is not good for l.k.s. ... From:...
Thanks for your warm welcomes! My husband just took my son to the hospital for his overnight EEG. I'll report back about what becomes of it. It seems like many...
Jennifer, We did the steroids with Keppra, but Tai never had an outward seizure and I'm really not sure if the Keppra actually did anything. When we got back...
Jennifer~ Â My daughter has been on Acthar for over 7 months and the increase in speech in amazing. Acthar is a steroid but on the cortison side. We tried the...
pleeze sam.  can you remind me for how long exactly did you maintain the hydrocort. is it a one year with a normal eeg or is it two years. ... From: Sam...
pleeze Sam .I also want to ask the other kind woman whom her son was following with oliviers protocol. i really forgot her name.the woman who also tried the...
I found the protocol in an email from Sam back on July 9, 2008. It says the protocol is 5mg/kg/day for 1 month, then 4mg/kg/day for 1 month, then 3mg/kg/day...
Hi Everyone: Our daughter was just diagnosed yesterday with Landau Kleffner Syndrome. We live in the Minneapolis-St. Paul area of Minnesota & would like to ...
Hi Abeer, Olivier recommends at least a year's treatment, but we ended up doing nearly 3. This was because when he was previously on the Prednisolone, it...
Hi Pam, Welcome to the group. How old is your daughter? Has she started any treatment yet? How is doing in terms of language, behaviour etc. Would love to...
Hi Pam We too live in the MPS area. Who is your neurologist? We see Dr Frank Ritter at Minnesota Epilespy Group. Sue Hi Pam We too live in the MPS area....
Hi Sam: Our daughter is 8 years old. We adopted her from China at 1 year of age. At that time, she was talking, saying Mamma and Babba & appeared to be...
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