My daughter started having seizures in her sleep when she was 6. She was in 1st grade and they started over Christmas Break. Before Christmas she was a...
Welcome! My dd is currently at the place your daughter's battle started (we're repeating 1st grade next year).... but I wanted to welcome you and encourage...
Yes, we are in the same boat!! Hannah is 10 and speech and socialization are getting better but she is having a really tough time with reading. I am doing a...
She is going into 6th grade this year, and at the last IEP meeting she was reading on a 3rd grade level. But this is school terms. She can actually read things...
It's encouraging that your daughter has reading skills.   In my past life, and ironically where I met my husband, I worked in disability services -...
Hello: I am interested in hearing from anyone with knowledge about side effects of Depakote, especially irregular menstrual cycles. Also if anyone has...
My SOn is going to be 6 and he has lks. He has had some pretty severe regressions and some times when he is okay. Last year he was in kindergarten. They had...
Wren - Does your district or a district nearby have a deaf classroom? In PA we have what they call an Intermediate Unit that all the districts in an area pay...
So far, we have had just a few issues with school. The biggest one was around exclusion -- they wanted to require school nurses for field trips -- and then...
First of all if it is in the IEP they must follow it. If the health plan is from the docttor they must follow it. Â Second, Communication is a must and if...
That is awful! I am so sorry you have had to deal with a school like that. As far as them not giving the diastat and not calling for help sounds like...
My son has been on depakote for a year now. He is 4 yrs old. It somewhat calmed him down, each time we have increased it, it would make him tired for a few...
My daughter's menstrual cycles were very long, irregular and heavy on Depakote. Since it is the one drug that consistently controls her seizures, she gets...
my daughter is 5 and was on depakote for about 6 months. she was fully potty trained prior to starting it but immediately started wetting the bed when she...
Hi everyone!! It's been a while but I could really use a big favor! If anyone could post Dr. Dulac's ACTH protocol and email address, I'd GREATLY appreciate...
I don't have the protocol but I can tell you that when we started 4 months ago we were told that it was .30ml IV for the ist 3 days in Hosp then .30ml every...
Hi all, My name is Jill and my son Will was recently diagnosed with LKS. He has been on Depakote for 5 days now, but so far I haven't seen any changes in his...
Jill - Hi and welcome! My daughter is now 10 and just today had her second clear EEG, are we home free??? Cross your fingers, I hope so.We tried Depakote and...
Hi Jill, I'm Sam, mum to Tai,7. Unfortunately, I am unable to help with neuros in the States as I live in England. Unless you fancy a trip to France! We saw a ...
Thanks sooooo much Sam! I just sent him an email as well to see if he could send the info straight to our neuro's office too. I just wanted to make sure I had...
Hi, My son Will is 4 and he was just diagnosed 6 days ago. I have to say I'm still in shock. In the beginning I just thought his "not listening" was a ...
I talked to Ronald McDonald house and they said they cannot accomodate me as it will be me and my 4 kids because of fire codes. The "guest house" has suites,...
Hi Andrea, Tai started his treatment at home in the tablet form. As I said he started on a huge dose so he had to be monitored closely. We went to the hospital...
Hi again Sam, Yeah unfortunately it does seem like she's becoming more of a guinea pig. :( I'm tried of jumping from one treatment to the next. Especially...
Hi Jill, Tai was diagnosed when he was 3 and a half. This was after we took him for hearing tests because we thought he must have somehow gone deaf. Its so...
Andrea, Sounds like you have been busy! Good luck with the website, what a great idea. I think its also a good idea to get a second opinion, this is our kids...
Having problems with message search?
Fill out this form to ensure your group is one of the first to be migrated to the new message search system.
