My grandson has L.K.S. and displays the worst behaviour i have ever seen. As i am his full time carer i do not always cope well. He is physically and verbally...
Sedona's seizures have changed as of lately from petitmal to drop seizures. Her Neuro has put her on high dose Diazpam and the problem is this: Sedona has...
Im sorry if this sounds stupid..but I cant find any answers anywhere! Does the eeg change all the time? if its fine one week can it go back to being abnornal...
Hello everyone My daughter was diagnosed with Autism and 3 and then at 4 after an EEg they decided she has LKS. She goes to a special needs school and is doing...
We have never had any proof that Lititia has ever had a seizure although she has moments of 'blankness' and moments where it seems like she hasnt a clue what...
Hi Sam, Taylor's last EEG was February and her Prednisolone dose has not changed. So I assume (but am not sure) that the spike wave has not returned. There is...
Hello everyone, It has been a while since I have posted. Life has taken over a bit. My daughter Taylor (aged 4) has LKS. She has been on Prednisolone for over...
Hi Noreen and Katie, It is message 20046, but it is this message board: http://health.groups.yahoo.com/group/lks/messages I hope it can be of some help to you...
Hi Katie, I'm Peta. My daughter, Taylor, is 4 and was diagnosed with LKS 12 months ago. She has lost all receptive and expressive language. Her seizures are...
Hey everyone! Just got back from the neuros a while ago. Porcelain's got a clear EEG!! :) Of course we didn't get her to fall asleep, but it wasn't picking...
Our three yr old daughter was dianosed three weeks ago with LKS. She has had an EEG and MRI.The doctor explained to us that she shows seizure activity.He...
Hi I am a mother to a 9 year old son who lost the 50 or so words he had at age 14 months and regressed. He got some language at age 3 but it's been a real...
There is another website where most of the members are LKS families. rareepilepsysyndromes@yahoogroups.com It is worth checking it out. Both Moderaters have...
Hi everyone, We are new to the LKS diagnosis, Kyra (my 6 yr old daughter) was dx last month. It appears that the former neuro missed it on her last EEG two...
Hi all my name is Nickole and my 6 year old daughter has gotten a diagnosis of lks from her neurologist. He started her on ACTH and only kept her on it for...
Hi my son just turned three and five mos ago he had his first seizure. An EEG showed he has characteristics for LKS although his neurologist is hesitant to...
I am looking for anyone that would like to share some info on Landau Kleffner. As far as child's behavior, types of seizures <if any> and anything else you...
Is there a designated ribbon or anything that we can use for LKS Awareness? Missy- SAHM & Angel to Warrior Michael!! I am who I am because that's who I am, ...
I want to thank everyone for all the great information. We just came back from Ft. Worth and my son's EEG was normal even overnight. So no LKS. Thanks...
Hi. I was looking for information on LKS and came across this group. A little bit about how I got here...My son was a normally developing little boy until just...
I have also posted this on 'Rare Epilepsy Groups'page, so please forgive me if I have caused your mail box to overflow! Hello Everyone, We received great news...
Hi everyone! Hope y'all had a good Thanksgiving! :) I was just wondering what kinda of experiences you've had with Lamictal? My LKS dd is currently on...
Hello everyone, I am surfing the internet looking for support groups and info on LKS. My daughter is 3 1/2 and was diagnosed with LKS in May 2006. Her ...
I don't see how 24 hours could be overkill. I haven't kept up with the posts too well here, but yours stuck out. I know my sister at one point had a 3-day...
Hi all, Just wondering if any of your children have been prescibed this drug? Did it assist with behaviour management and sleep problems? What were the side...
Hi all.... I have written before, and I apologize for always asking so many questions and the same questions to boot!! I just never feel like I have all the...
Hi, My name is Jennifer and I have a son who was diagnosed with Developmental Aphasia (meaning it wasn't acquired). I have yet to talk/meet with anyone who...
For those of you on here, I wanted to let you know there are 2 other forums for LKS named "lks" and "folkslist" which both have a much higher number of...
Hello. Does anyone know of a good child neurologist in the Dallas Fort Worth area? I am wondering if my son has LKS instead of Autism. Thanks, Beneal...
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