I am looking for anyone that would like to share some info on Landau Kleffner. As far as child's behavior, types of seizures <if any> and anything else you...
Hello!! Let me know if I can help. My 8yr old son was diagnosed August 2005 with LKS. He is also on the autism spectrum and the behavior---OH MY!!! We have...
Hi, My 6 year old son Tai was diagnosed 3 years ago with LKS after losing all language, receptive and expressive. He never had an outward seizure though. His...
... seizure ... or ... Thank you for responding! Kerry has taken Lamictal, Depakote & Depakene, Carbitrol, Clonipin, Keppra, Topamax, along with a few others....
Hi, Tai also used sign language for a long time to communicate. But, as his language has slowly returned, we never or rarely use it anymore. Have any of these...
... Kerry is not on any med's right now. She has never had a clear EEG. I am looking for a new nuerologist now. I dont feel they are doing enough for her. Her...
Sedona is on a extremely low dose of valium for her seizures (6mg 2xd). She did terrible on the meds and great off them so we have decided to stop most of her...
Hi my son just turned three and five mos ago he had his first seizure. An EEG showed he has characteristics for LKS although his neurologist is hesitant to...
Hi Stacey, If his EEG shows the spike and wave pattern, then he has LKS. Some neuros will call it an LKS variant due to him being 2 when diagnosed. But...
Go see another Neuro. My daughter was dxed with LKS at 18 months and we took her to CHOP in Philidelphia. The dx is important to start working on improvements....
Sam- Thank you for responding so quickly. It is nice to hear from someone that not only knows what LKS is but has been through all of this. My sons name is...
Sam- sorry the last email was sent too soon, I pushed the wrong button. How long did it take to get your son diagnosed and how soon did you start to see the...
Hi Stacey! Just thought I'd jump in here too! :) Porcelain's 6 and was
diagnosed with LKS back in October. At the time she was still speaking in
sentences. She...
Hi Stacey, I know how heart-breaking it is to see your child going through this. Tai lost everything, he would scream and scream with frustration. He also had...
Hi all my name is Nickole and my 6 year old daughter has gotten a diagnosis of lks from her neurologist. He started her on ACTH and only kept her on it for...
Hi Nickole, If you read my message further down it explains all about my son Tai who is now 6. We were lucky that he was diagnosed quite quickly, but only...
Hi everyone, We are new to the LKS diagnosis, Kyra (my 6 yr old daughter) was dx last month. It appears that the former neuro missed it on her last EEG two...
Hi Terry!! Where in MD are you and who is the neuro? Missy- SAHM & Angel to Warrior Michael!! I am who I am because that's who I am, --Taylor, 8 Aspergers,...
Hi Terry, All I would say is be prepared to treat it aggressively as you've already mentioned. As long as you can get rid of those spikes, there's no reason...
Thanks, Sam. Has anyone experienced speech being strong one day, and then the next they can't get the words out at all? It's kind of going into a remission,...
Hi Missy - I live in Westminster. How about you? We are seeing Dr. Shafrir @ Sinai....after not getting anywhere with the neuro @ Hopkins. Terry ... From:...
Hi Terry, My 8yr old son, Taylor does that. One night he couldn't say a single word. The next morning he could talk but his speech was more slurred than usual....
Terry- Can i ask why they started her out on Klonipin?? Why didn't she try some of the more milder drugs first?? It is my understnading that Klonipin is a...
Thanks Gina. Kyra is a very visual learner. She loves doing Hidden Pictures, and in fact is quite addicted to them. She can find the pictures so much faster...
rareepilesysyndromes@yahoogroups.com also has lots of LKS families. Gina ... Ahhh...imagining that irresistible "new car" smell? Check outnew cars at Yahoo!...
Oh my gosh! That is so Kyra......she wants something and we struggle to figure it out, then when we figure it out and ask her if it's the correct item she has...
Terry, I'm sorry but I seem to have deleted your original message. What made the new neuro change his mind? Did you have to do something different? The...
We are in GA and we go to the Medical College of Georgia neuro department. We had our second video EEG done on 30 March in preparation for MST surgery. They...
Terry, What you are describing is typical of LKS kids, having language one day, then regressing the next. Although, this didn't happen with my son Tai (he...
Hi Kim, What's happening? I can't believe they have suspicions about the EEG. Did they say what exactly? And can you get a second opinion? Please let us know...
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