... exactly ... it ... course, ... not ... if ... Sam, Thank you. Naoah is currently taking a medicine called Keppra; however, I think it is causing his...
Hi Crystal, Tai is also on a small amount of Keppra, we're not sure if it's actually doing anything and we plan to wean him off shortly. Tai would also scream,...
Just want to know how exactally they do an 24 hr. EEG on a almost 3y.o. Brody has one coming up and can't seem to imagine how they ( we'll ) get him through...
Jennifer~ When Sedona was little we had a tee shirt and on the back we put "I act this way because I have seizures, What is your excuse?" On the front we put...
Hi Jennifer, As Gina said, can you not print off lots of info to show your family? As for other people, its their own ignorance. People would stare at Tai ...
Sam Actually I did print off info for them on LKS, signing , apraxia and attached a letter stating everything Brody has been through in the last year and a...
check out my pics, in the third one, he is wearing a little fanny pack that holds the box that all those wires come out of, and that box is attached to the...
Debi, Thanks for sharing your pics, what an adorable little guy.The nurses were the worst @our last EEG also. I guess until your the parent of a child going...
Jan 5 07, Today was one of these days that you wish never happened. We took a 16 yr old sitter to Cal for Serbian Christmas to watch Sedona. When we got there...
I am so sorry to hear this. That is exactly why I don't want to have a sitter. I pray to God that he makes a way for me to be home for Noah. I just don't...
I was wondering if any of you have purchased a tracking device for your child and what kind and where did you get it? We want to use the implanted device but...
It has been a little while since my last post. I thought I would update you on where we have been since we first had Levi's first abnormal EEG. We went back...
Every year thousands of Special Needs Children wander away from their homes. Some are found alive but some are also found dead. I remember countless times on...
I've tried to use this site for help in the past, please write back if you can help. My son Gage has been diagnosed w/ LKS for 2 years. His tantrums are...
Thousands of our kids go missiing every year. Not just special needs kids but the typical ones as well. I am petitioning our state to get the Care Track system...
Also remember to send it to my address when you send it to others. Thanks donabug2001@... ... Be a better friend, newshound, and know-it-all with Yahoo!...
What meds is you son on? I had a very difficult time with Zander's behavior when he was at his worst and I told the neuro that I was finding it harder and...
Hi, I think Rosa has said it all. It is so difficult to know how to react to his behaviour, knowing that it is due to this awful illness. I too, think its...
Thankyou for your concern it helps to know we are not alone in this battle. My son Gage is on Depikote 250mg in morning & 375 at night. We had his last EEG in...
... school but his tantrums and bad behavior hold him back. He has been sent home from school twice for hitting during a tantrum. ... react ... too, ... ...
My name is Sam and my daughter Sarah was recently diagnosed with LKS in Oct 07. She was 4 1/2 at the time. She started on Depakote immediately and is now on...
HOw many of you have kids with LKS that had an EEG with ESES and then had one years later with no ESES?? Have you seen the ESES clear up?? Have you given your...
Hi My name is Crystal and my son Noah is 2. We live in Florida and e see Dr, Casadonte who works with All Childrens Hospital in St Petersburg. Noah was...
Hi, welcome Sam & Sarah! Fantastic when you see progress isn't it? My dd went on zarontin/keppra combo in October and we've seen amazing progress too. She's...
I'm no help... Emi had a 30% spike wave pattern awake & asleep when 1st dx. Now, it's about a 5% pattern, mostly during sleep. Laura Ryan 53 Cooper St. ...
What awful news to add LGS to Sedona's list of dx's. Poor Angel... she must have a very strong spirit! (and awesome parents!) God Bless, Laura Laura Ryan 53...
Martha~ The weird thing is is that the neuro came in and told us that she doesn't have lks she las lgs. Of course he was not our doctor and he did not know her...
Hello everyone, I am looking for an information booklet that could be given to educators and teachers that has the basic information regarding LKS in it. An...
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