I'm really just thinking aloud - but would appreciate any options/thoughts... A bit of background, my daughter was diagnosed with LKS at 3. She lost all...
I think that you should put her in the 2nd class. My daughter was dxed at 3 and is now 10. We had her in a ton of classes but the smaller ones focusing on...
My daughter was dx with LKS just last week, she is 6. So, I clearly don't have much info.... 1st, congrats on the clear EEG!!! That is fantastic. Our current...
Hi Peta, This really is a difficult one. Are the 2 classes at different schools? We were in a similar situation, although slightly different. We had the choice...
Thanks everyone! Sam - Both classes are at the same school. I attended an information evening last night and feel much better about things. Taylor will be on...
Peta, It's great that the classes are in the same school. As you said it would be best if she could start off in the right class, but it seems like they are on...
Hi Sam, I was hoping to ask a somewhat personal question. How does Tai perform academically? We are still 'in the dark' regarding Taylor's cognitive...
Can write her name by herself!!!she can also copy most letters!! She was really angry with me as i have kept her off of school with a bug this week but shes...
Congrats!!! What great success!!! My daughter is starting to regain some writing skills too. I joke that I'm the only mom in the world that LOVES it when the...
Hi Peta, When Tai was 3 and in 'normal' nursery he had learned to write his name. He could also recognise some words and logos. After this he lost his language...
Hi Sam, Thats great. She seems to be doing really well, lets hope it continues! Unfortunately behaviour problems are so common in LKS. Its good that school are...
In a message dated 11/12/2007 21:29:21 GMT Standard Time, Sammycambridge@... writes: Hi Sam, Thats great. She seems to be doing really well, lets hope it...
Sedona has had a hard time lately. She is having more and more seizures and even though we added a new med(Zonegran) this has caused her to have more seizures...
Gina - I don't know, I feel so bad for you and Sedona. I hate epilepsy!! That is the way Hannah was when we sent into the hospital. I think it was the lamictal...
hello, my name is Debi and my son is Alex. We are new to the group and look forward sharing stories and questions. My son lost his speech very early, at two...
Hi Debi, I'm Sam, my 7 year old Tai has LKS. He was diagnosed when he was 3 after losing all language completely. He was treated with steroids, first...
Hi Debi! Im Sam and my daughter Lititia is 6, SHe lost everything at about 20 months, speech and understanding, She was diagnosed with Autism at nearly 4 and...
Hello everyone i'm Jennifer and my son is Brody he lost his speech completly at 18 months , he's now 3 and he's in intense speech therapy we have not exactally...
Hi, my daughter was only dx with LKS about a month ago. She was already on meds for epilepsy, but not ones that were appropriate for children with LKS. With...
Keep going to speech and teach him to sign. My daughter is now 10 but was dxed at 18mo we did tons of speech and signed to her and she started talking at age 5...
... and signed to her and she started talking at age 5 with the help of Carn-aware. ... it has really cut down with his frustration. what is Carn-aware???? ...
Hi Jennifer, I'm Sam, my son Tai is 7, diagnosed with LKS at 3. I know Brody is very young but I believe the best way is to treat aggressively. Tai lost...
Hi Sam , nothing yet, we seen our specialist in Sept. who suggested that we wait until his 3rd b-day ( which is in 3 weeks ) before putting him on anything to...
Nutritional Supplement Research Introduction: What is Carnosine? The supplement that you are interested in learning more about contains 200mg powdered...
Gina S. Thank you for the information on Carn-Aware, I also did a little research on the web, but the info. you gave me was one of the best so far. It's not...
Hi Jennifer, We tried Carn-Aware with Tai, it didn't make any difference at all. As it can't do any harm then I think it could be worth trying, it obviously...
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