My daughter is having Drop seizures but is not loosing consciousness. Do any of you also have this problem and do you use a helmet or a walker?? Gina ... Need...
HAS ANYONE USED ONE OF THESE FOR SEIZURE SUPPORT?? MY DAUGHTER HAS SEIZURES THAT FREEZE HER IN POSITION AND ALSO DROP SEIZURES WITH A WARNING SENSATION. WE...
[ Home > Product Catalog > Mobility Aids > Walkers > Adjustable Height Ambulators by MJM > 16" and 18" Rollators by MJM ] 16" and 18" Rollators by MJM Stroller...
My little sister had drop seizures but not too often, so we did not mess with a helmet. I would use a helmet if they happen once a day or every other day or...
I was wondering how things went when you weaned your kids off of Valium?? Has anyone been on Valium and Phenobarbital at the same time?? What side effects...
Hi Sam, Thank you Sam. We tried to find out how to get in touch with Courtney but weren't able to. Would anyone be able to give Courtney our email address? ...
My son is 7. He was diagnosed with LKS 3 years ago. He has done great up until about a month ago. He has started having problems with receptive language...
Has anyone had IVIG infusions? My son had them last week and we haven't seen any improvements. We are wondering how long it takes to see improvement. Thanks...
He was diagnosed at 4 and 1/2. At that time we did 3 months of ACTH. After that, we had to start Prednisone. He responded very well. Over the last three...
Hi, My son was diagnosed at age 3 and a half, he has just turned 7. We tried the Prednisolone after his diagnosis, and this cleared his EEG. As we reduced the...
When I was in the school for kids with aphasia, I was ages at 9 thr. 14, they didn't use sign language. There were about 7 kids with one teacher and one aid....
Sam, I feel our neurologist is just playing a guessing game with meds for Kyra. First we tried Klonopin, she was on that for 5 mos, and continued to have...
Terry, Since she is so young and having feeding problems anyway, you might want to look into the ketogenic diet. (It worked for my daughter for a year and a...
My son Gage was diagnosed at age 4. And since then he has been on three different medicatios that have not worked. First we started on Valium, the effect on...
Terry - The prednisone was our miracle. My daughter, Hannah was on pred at age 7 (She is now 10)for about 9 months ( Iwanted it longer) it has worked for her...
Jenn, Since Kyra started the Klonopin for the LKS she stopped eating. She stopped asking for food, stopped asking for something to drink. We stopped the...
Hi Terry, My 9yo son has CSWS and it is only in the past 3 years he has been eating and drinking "normally"; since he has been on steroids and is able to...
My dear friends~ My 10 year old daughter just started her period and her pediatric doctor wants to give her Depo-Provera Shots to stop her period. Have any of...
Gina, My daughter just got her first shot and had no side effects. Her cycles were so terrible, irregular, heavy and too long. They told me that Depakote and...
Hey everyone! :) Porcelain has still been seizure free and we're 1/2 way through the wean down on Prednisone. Here's something slightly odd we're noticing...
I've been on Depo for YEARS! In fact the only times I got pregnant is when I was told I had to go back on the pill for a year, my period was all out of whack,...
Andrea - We weaned that same way after a while. Hannah took 40 mg every other day for 1 month then 30mg every other day for one month then 20 every other day...
ihave had the worst weekend ever ethan was trying tohit me with a golf club, it took several neighbours to help me to get it off him without getting hurt. his...
Hi Martha! Thanks for letting me know how they did it with Hannah! Did you notice any changes in her attitude for one day to the next? On the 40 mg days she is...
Andrea - Do they have a plan to give her another med as she weans the pred? We simultaneously worked her up to dose on lamictal as we weaned the prednisone....
Martha- She's currently on Depakote right now as well, she's been on it since October. We had tried Lamictal from December until April with horrible side...
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