Sam, You reminded me of something with your comment about the NHS. There is a Michael Moore movie coming out that I am dying to see that "exposes" the US...
So if he has a regression, does the EEG have to be done immediately (as in take him to the ER?) -Susan Rosa Morina <mrsseuss2@...> wrote: Susan, In my...
I would say yes. Zander tried many different drugs and some worked(for only a short time in his case), his EEG would clear up, his receptive and expressive...
Okay, it certainly did us no good to wait 4 months for an in-patient scheduled EEG! -Susan Rosa Morina <mrsseuss2@...> wrote: I would say yes. Zander...
We have never had any proof that Lititia has ever had a seizure although she has moments of 'blankness' and moments where it seems like she hasnt a clue what...
Im sorry if this sounds stupid..but I cant find any answers anywhere! Does the eeg change all the time? if its fine one week can it go back to being abnornal...
Hi Susan, Sounds like an interesting film! It certainly does go on in this country, we have long waiting lists, unless you're willing to pay. We also have what...
Sam, The EEG as a rule won't change all the time if the child isn't on treatment. But, thats not to say that it can't or won't change. Anything is possible! If...
Hi Sam, Unfortunately with this illness, there is always the chance of relapse. I just wonder whether Lititia's activity has gone away on it's own, it does...
Hi sam ours is the same neurologist, Dr O calleghan but he has only seen lititia once since she was diagnosed in the past couple of years and she has only ever...
Hi Sam, Tai had monthly EEGs all throughout his treatment. Now he is coming to the end of it, he is having them at every reduction in the dose, so every 7-8...
this is very confusing for me, she had one when she was 3, got diagnosed at 4 (there was only a weeks difference she was near her birthday ) and now she is...
You're right, they should have sent her for at least one since her diagnosis. In Tai's case, he had them so regularly because at the start he was treated with...
Sedona's seizures have changed as of lately from petitmal to drop seizures. Her Neuro has put her on high dose Diazpam and the problem is this: Sedona has...
... Re: adult LKS seeks peer support Hi Katie and Noreen, Here is a message from Courtney, posted on the LKS board, which I've copied onto this board for you....
My grandson has L.K.S. and displays the worst behaviour i have ever seen. As i am his full time carer i do not always cope well. He is physically and verbally...
Hi Wendy, I think most parents (and grandparents) can identify with what you are saying. At some point, most LKS kids display terrible behaviour, as a direct...
... old and i went to wake his he was unrousable. We wnt straight to hospital where he ubderwent several tests including a head scan as they seemed to think it...
Wendy, How old is Ethan now? When was the last EEG performed and was it clear? Is he making any progress at all with his language? Whereabouts are you? We live...
Hi Sam, Ethan will be 10 in 2 weeks time, he has only ever had 1 EEG which was the one that had the spikes and troughs of LKS our pediatrition keeps saying he...
Wendy, Lots of children have regressions with this illness. The aim is to clear the EEG and keep it clear. I'm amazed that he has only 1 EEG in 6 years. Your...
My daughter is having Drop seizures but is not loosing consciousness. Do any of you also have this problem and do you use a helmet or a walker?? Gina ... Need...
HAS ANYONE USED ONE OF THESE FOR SEIZURE SUPPORT?? MY DAUGHTER HAS SEIZURES THAT FREEZE HER IN POSITION AND ALSO DROP SEIZURES WITH A WARNING SENSATION. WE...
[ Home > Product Catalog > Mobility Aids > Walkers > Adjustable Height Ambulators by MJM > 16" and 18" Rollators by MJM ] 16" and 18" Rollators by MJM Stroller...
My little sister had drop seizures but not too often, so we did not mess with a helmet. I would use a helmet if they happen once a day or every other day or...
I was wondering how things went when you weaned your kids off of Valium?? Has anyone been on Valium and Phenobarbital at the same time?? What side effects...
Hi Sam, Thank you Sam. We tried to find out how to get in touch with Courtney but weren't able to. Would anyone be able to give Courtney our email address? ...
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