As some of you may remember from my previous posts........our neuro does not think our daughter has LKS. Not sure how she can make that decision after...
What you are describing sounds like auditory agnosia. Which is a symptom of LKS. The ears work perfectly fine, but the brain is not processing what the ears...
Hello Everyone. My name is Peta, I live in Australia. My beautiful 6 year old daughter Taylor has LKS. We have been dealing with this for the past three years....
Sounds like my kid and she is diagnosed LKS variant. The watching the mouth thing is from trying to read lips. Hannah did this. I would get an appt with...
Hildy, If I remember correctly from your previous posts...you also said you were going to have a repeat 24 hour EEG, has that been done??...if that is abnormal...
Sharon, We are getting ready to start prednisone Friday afternoon. Just wanted to let you know. We've been trying for 3 weeks to get a letter from the neuro to...
My son has several auto-immune diseases, and as some here may know, LKS is thought by some doctors to be auto-immune (specifically, viral) in origin. My son...
Sharon, Â I love your e-mails......they are always so informitive and always motivate me. Â I scheduled a phone conference with my current neuro about tx for...
Holly,  Did you see Dr. Kessler in Philadelphia?  I think you said you were pleased, right?  Hildy   Holly, Did you see Dr. Kessler in Philadelphia?...
Hildy, Several of us on this board see Dr. Rossignol. He is a DAN! doctor, a family practice physician, and has two children of his own with LKSV. He has been...
Hildy, Glad I could help...I told my husband that your emails remind me very much of where I was last Fall. See myself in your emails. Other moms on this site...
Suzanne, Hey, I have been giving flu vaccines for the last 20 years in Nursing homes, hospital, doctors offices and even worked for agency giving flu vaccines...
Hi Hildy, Are you using pictures with your daughter that have the written words on them? Nicholas was diagnosed at 22 months (with abnormal activity and then ...
ops I hit send by mistake :) Here is the entire message. Â Lucy, Â Thanks...I'll check my library to see if they have those videos. Â Kate too loves...
Yes, most of their patients are from all over the world. Melbourne Florida is a very small town. People come from all over. We do phone consults every 6-8...
The flu vaccine may be mandatory - it hasn't been ruled yet. Steroids on this pulsed schedule aren't immunosuppressive so it should not affect vulnerability to...
That's interesting about the mirror reading. Tom could mirror read and upside down read since he first started to read. He can mirror read almost as well as he...
Suzanne, Check the "drug interactions" info on your son's steroid for a statement like, "Do not have any vaccinations, immunizations or skin tests while you...
Lucy and Hildy, See A LOT of what we have done with my son over the years in what Lucy wrote. Thomas was taught to read by combination of whole word ...
Suzanne, Will still have to sign consent for flu vaccine...say he is allergic to eggs or has had an an adverse reaction to flu vaccines in the past. No health...
Suzanne, Ditto for us!!Mirror readers and good spellers, the whole family!!! Fascinating to me how these kids are so similar AND so different. Sharon...
Hello All, Think everyone is reading and posting tonight.Have a question regarding this new annoying symptom Thomas started around July 1st and HAS NOT...
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