Landau-Kleffner syndrome with mitochondrial respiratory chain-complex I deficiency. Kang HC, Kim HD, Lee YM, Han SH. Department of Pediatrics and Epilepsy...
Sam, For some reason I can't get into message 20046. It looks like there are only 111 messages. Thanks, Noreen Sam <Sammycambridge@...> wrote: Hi Noreen, I...
Hi, my name is Katie. I am 23 years old. I have problems processing language since I had LKS as a child. Does everyone have any questions for me? I have no...
Hi Katie, I'm Peta. My daughter, Taylor, is 4 and was diagnosed with LKS 12 months ago. She has lost all receptive and expressive language. Her seizures are...
Hi Peta, it is nice to meet you. My mom had same worries about me. I lost all receptive and expressive language at age 3 1/2 from seizures. I had terrible...
Hi Noreen and Katie, It is message 20046, but it is this message board: http://health.groups.yahoo.com/group/lks/messages I hope it can be of some help to you...
Hi Katie, I have a 6 year old son Tai, who has LKS. Its great to see you posting. I would like to ask, how you have expressive, but not receptive language? In...
Katie, what does it sound like to you when people are talking, can you describe it...do you also have problems processing enviormental sounds? Thank you sooo...
Hi Sam, My speech is pretty good but sound like hard of hearing person. Sometimes the people have a little hard time understanding me. I got my speech back...
Hi Rosa, I hear the people's voice but I don't understand what they say. The doctor told my mom it is like if someone talks to her in a different language she...
Hi Susan, I don't remember too much when I had seizures for 6 years. I know I was very frustrated and had tantrums. I don't remember what it felt to have...
What type of school was this? -Susan Katie Usler <keusler@...> wrote: Hi Sam, My speech is pretty good but sound like hard of hearing person. Sometimes...
It was the S.F. Hearing and Speech Center. They had a program for kids with Aphasia and and a separate program for the deaf. Katie was in the Aphasic program...
Hello everyone My daughter was diagnosed with Autism and 3 and then at 4 after an EEg they decided she has LKS. She goes to a special needs school and is doing...
Hi Sam, You don't happen to be the Sam from Kingsbridge do you? If you are, then hello again, I wrote to you last year when you posted about your daughter. If...
In a message dated 28/06/2007 21:58:05 GMT Standard Time, Sammycambridge@... writes: Hi Sam, You don't happen to be the Sam from Kingsbridge do you? If...
Hi Sam, We too have an autism dx, but his neurologist suspects LKS. We have had a strange set of circumstances that make the dx of LKS difficult. I'm curious...
Hi Susan, This is the other Sam, I have a 6 year son Tai with LKS. From what you have said it sounds very possible that your son does have LKS and the IVIG has...
Hello everyone, It has been a while since I have posted. Life has taken over a bit. My daughter Taylor (aged 4) has LKS. She has been on Prednisolone for over...
Hi Peta I wish I could help but Im not very good really with it. I can tell you though that Lititia is nearly 6 and at a 3 year old level of speech. Her speech...
Hi Sam, Has Lititia got a clear EEG (the last one)? Or did it still show spikes? I just wondered why you decided not to treat? Usually the autistic traits go...
Hi Peta, This sounds so much like Tai. When he started the Pred he gained about 5 words (including no and wee-wee!). He gained a couple of other words here and...
Hi Sam her last EEg wasnt clear, the only treatment they offered her was steroids and she is far too young for them. ( personal opinion). Ive seen friends ...
Susan, In my opionion this sounds very much like LKS, and not autism at all...If you can get him in for an EEG during one of his regressions they will probably...
Hi everyone, I read your post and I could completely identify. I'm sort of new to the group, but feeling very old to LKS. My daughter, Shardaye is 16 and at...
Hi Sam, Taylor's last EEG was February and her Prednisolone dose has not changed. So I assume (but am not sure) that the spike wave has not returned. There is...
Has anyonee has good results with high dose valium?? My daughter has 3 rare disorders so high dose steroids will kill her and obviously out of the running. We...
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