Hello. Does anyone know of a good child neurologist in the Dallas Fort Worth area? I am wondering if my son has LKS instead of Autism. Thanks, Beneal...
Hi, My name is Jennifer and I have a son who was diagnosed with Developmental Aphasia (meaning it wasn't acquired). I have yet to talk/meet with anyone who...
Hi Jennifer, I'm Sam, mum to Tai aged 5(thats him in the photo!). We live in England. Tai was diagnosed with LKS in April 2004. Tai has never had a seizure...
Hi Sam, I appreciate your reply. My son had his one and only EEG done in October of 2004. It was done in the morning and was only watched for about 30-40 min....
Hey again.... I was just thinking about saying that my son is NOT losing his language---but maybe he is, it is just so subtle? For example: when he was trying...
Hi Jennifer, Yes, this sounds very familiar. Not with Tai, but so many parents have reported this in their children. One day they learn something, the next its...
For those of you on here, I wanted to let you know there are 2 other forums for LKS named "lks" and "folkslist" which both have a much higher number of...
I used to be on that list but I can't find it again. I looked at the Folks website today for it but I came across this one. By the way I am new. I have...
Hello everyone, I am surfing the internet looking for support groups and info on LKS. My daughter is 3 1/2 and was diagnosed with LKS in May 2006. Her ...
Hi Peta, I'm Sam and I live in England. My 6 year old son Tai has LKS. Tai was diagnosed in April 2004, he was also 3 and a half. By the time he was diagnosed,...
Hi Sam. Thanks so much for replying to my post. I am also a member of the LKS Australia yahoo group -however it is not a very 'active' group. Taylor was...
Hi Peta, First of all, thank goodness you have a paed who is so on the ball. Most children take years to be correctly diagnosed. You have that in your favour,...
Hi Sam, Wow, I had no idea that the steriods were a 'longer term thing'. I was originally told 6 - 8 weeks! I find that the doctors here, although wonderful,...
Hi Peta, Thanks for your call recently - please try again, anytime from Mon 25th onwards; am home during the day this week. Am keen to find out more details...
Hey Lee, Yep - will call when I have a quiet moment. Chat to you soon. Peta ... From: LandauKleffnerSyndrome@yahoogroups.com on behalf of Lee Sent: Sun...
Jennifer- My daughter was dxed at 18 months. At 15 months she had a 10 word vocab but talked like a deaf child. At 18 months she lost everything, language,...
Hi Peta, Yes, a lot of neuros prefer the short term treatment, the only problem is if the activity returns afterwards. Sometimes it can't be controlled twice...
Hi all.... I have written before, and I apologize for always asking so many questions and the same questions to boot!! I just never feel like I have all the...
Hi all, Just wondering if any of your children have been prescibed this drug? Did it assist with behaviour management and sleep problems? What were the side...
Hi Peta, CJ has recently been prescribed this for head banging behaviour when he becomes frustrated. He takes 0.25ml (tiny dose) at night. He was originally...
I don't see how 24 hours could be overkill. I haven't kept up with the posts too well here, but yours stuck out. I know my sister at one point had a 3-day...
I agree. A one hour is not enough time. Especially on the chance that your child doesn't fall asleep or is only on the verge of sleep. We had to go through our...
Hello. My son, Will, was diagnosed with Autism in April. I still do research and read books. I cam across LKS. I am just wondering if Will could have that...
Hi Beneal, The first step in getting an LKS diagnosis is to get a sleep EEG done, preferably overnight. This will show up the spike and wave pattern that LKS...
Hi everyone! Hope y'all had a good Thanksgiving! :) I was just wondering what kinda of experiences you've had with Lamictal? My LKS dd is currently on...
I have also posted this on 'Rare Epilepsy Groups'page, so please forgive me if I have caused your mail box to overflow! Hello Everyone, We received great news...
Hi Peta, Congratulations, that is fantastic news. We were in your exact position 2 years ago, and I posted all the same questions that you have! I admit I...
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