I used to be on that list but I can't find it again. I looked at the Folks website today for it but I came across this one.

By the way I am new. I have suspected LKS for quite some time because there is no other explanation. Many tests later we come to the diagnosis. She is on Trileptal but it doesn't seem to be 100% yet. She is about half the dose of where she should be and building up.

Thank you for letting me be part,
Alany

Michelle wrote:

For those of you on here, I wanted to let you know there are 2 other
forums for LKS named "lks" and "folkslist" which both have a much
higher number of members. If you haven't found them yet, they are
worth looking at.

Michelle