My daughter has a varient of LKS. She is not a case book child and she had a cortisol test and was seizure free for 10 days. She has never been seizure free. She has been on ACTH for 11 months and the changes in her have been amazing. She had severe CAPD and now it is mild, she is talking in short sentences and phrases and she is doing great with seizures for the most part. If you want to read up on our journey look at www.caringbridge.org/visit/sedonamarieseideman . I kept pretty good records on there of our ACTH journey. Please feel free to contact me directly donabug2001@...
Gina
--- On Fri, 1/9/09, grove_brandy <grove_brandy@...> wrote:
|