Hey again....
I was just thinking about saying that my son is NOT losing his
language---but maybe he is, it is just so subtle? For example: when he
was trying to learn his abc's ( a nightmare I might add) he would know
them one day and then it would be gone the next. This is the same with
names of numerous things--calling a waffle a waffle one day, the next
not remembering what to call it. This sound at all familiar to you?

On Jul 5, 2006, at 9:49 AM, Jennifer Gager wrote:

> Hi Sam,
> I appreciate your reply.
> My son had his one and only EEG done in October of 2004. It was done
> in the morning and was only watched for about 30-40 min. It was not a
> sleeping one. Our neurologist seemed surprised by the results and
> told us that there was abnormal activity on both sides of his brain.
> I don't really understand if he had "continuous spike and wave" but I
> do know that it was throughout the EEG--from beginning to end. It
> didn't just show up on one portion. Would that be continuous? The
> neurologist said that there were no signs of seizure activity. He was
> put on Trileptal for about 7 months---I didn't notice a change. I've
> asked several times if this has ruled out seizures and he gives me
> vague answers. He wants to do another EEG in Sept. or Oct. From Oct.
> 2004 until now, all we have done for him was have him in Speech and
> watched to see how he progresses (which is slowly--but he is
> progressing!).
> My guess is that my son does NOT have LKS, but something very similar.
> He is not losing language...he never really had it. He has come a
> LONG way in the past 5 yrs (he is not losing his language--would he be
> if he were LKS?). He still has trouble expressing himself, but he has
> learned to compensate. He has no problems with his receptive
> language. The thing that I worry the most about is his abnormal brain
> activity---is there something that we should be doing about this?
> When I try and look up info about abnormal brain activity I find info
> on epilepsy or LKS. I cannot find anyone to talk to about children
> with Developmental Aphasia (his diagnosis). Again, thank you so much
> for your help! I don't feel so quite alone. :o) I also checked out
> the other sites that you had posted. Think I will post on them
> also---just to see what info I can get.
> Thank you, Thank you!
> Jennifer
> PS Tai is precious!
>
>
> On Jul 5, 2006, at 5:34 AM, Sam wrote:
>
>> Hi Jennifer,
>> I'm Sam, mum to Tai aged 5(thats him in the photo!). We live in
>> England. Tai was diagnosed with LKS in April 2004. Tai has never had
>> a seizure either, just a gradual loss of language, from a very young
>> age.
>> From all that I've read, classic Landau-Kleffner Syndrome is
>> diagnosed between the ages of 4-9, but Tai developed it much earlier
>> than this and there is no doubt that he has it. He had good early
>> language at around 18 months, but this didn't really develop much,
>> then it gradually disappeared. There are cases that are referred to
>> as LKS-varient, maybe your son has this? When did he have the EEG?
>> Was it a sleeping one? Did he have the continous spike and wave
>> activity? What did the neurologist say about it?
>> The major symptoms of LKS are loss of language, receptive and
>> expressive, although some children don't lose all language and some
>> may still understand language but have difficulties speaking. Some
>> children have autistic tendancies and may have been diagnosed with
>> ASD. Some have difficulties sleeping, some have poor behaviour, poor
>> concentration and poor social skills. The list goes on, but every
>> child is different. I think most people would agree that LKS is a
>> spectrum, and one child is probably very different to the next child
>> who has it.
>> If you look a couple of messages down, I have listed some other
>> websites which have many more memebers than this one. It would be
>> well worth posting on these.
>> Please let me know how you get on with getting a diagnosis.
>> Sam
>>
>>
>>