Hi Sam,
I appreciate your reply.
My son had his one and only EEG done in October of 2004. It was done
in the morning and was only watched for about 30-40 min. It was not a
sleeping one. Our neurologist seemed surprised by the results and told
us that there was abnormal activity on both sides of his brain. I
don't really understand if he had "continuous spike and wave" but I do
know that it was throughout the EEG--from beginning to end. It didn't
just show up on one portion. Would that be continuous? The
neurologist said that there were no signs of seizure activity. He was
put on Trileptal for about 7 months---I didn't notice a change. I've
asked several times if this has ruled out seizures and he gives me
vague answers. He wants to do another EEG in Sept. or Oct. From Oct.
2004 until now, all we have done for him was have him in Speech and
watched to see how he progresses (which is slowly--but he is
progressing!).
My guess is that my son does NOT have LKS, but something very similar.
He is not losing language...he never really had it. He has come a LONG
way in the past 5 yrs (he is not losing his language--would he be if he
were LKS?). He still has trouble expressing himself, but he has
learned to compensate. He has no problems with his receptive language.
The thing that I worry the most about is his abnormal brain
activity---is there something that we should be doing about this? When
I try and look up info about abnormal brain activity I find info on
epilepsy or LKS. I cannot find anyone to talk to about children with
Developmental Aphasia (his diagnosis). Again, thank you so much for
your help! I don't feel so quite alone. :o) I also checked out the
other sites that you had posted. Think I will post on them also---just
to see what info I can get.
Thank you, Thank you!
Jennifer
PS Tai is precious!


On Jul 5, 2006, at 5:34 AM, Sam wrote:

> Hi Jennifer,
> I'm Sam, mum to Tai aged 5(thats him in the photo!). We live in
> England. Tai was diagnosed with LKS in April 2004. Tai has never had
> a seizure either, just a gradual loss of language, from a very young
> age.
> From all that I've read, classic Landau-Kleffner Syndrome is
> diagnosed between the ages of 4-9, but Tai developed it much earlier
> than this and there is no doubt that he has it. He had good early
> language at around 18 months, but this didn't really develop much,
> then it gradually disappeared. There are cases that are referred to
> as LKS-varient, maybe your son has this? When did he have the EEG?
> Was it a sleeping one? Did he have the continous spike and wave
> activity? What did the neurologist say about it?
> The major symptoms of LKS are loss of language, receptive and
> expressive, although some children don't lose all language and some
> may still understand language but have difficulties speaking. Some
> children have autistic tendancies and may have been diagnosed with
> ASD. Some have difficulties sleeping, some have poor behaviour, poor
> concentration and poor social skills. The list goes on, but every
> child is different. I think most people would agree that LKS is a
> spectrum, and one child is probably very different to the next child
> who has it.
> If you look a couple of messages down, I have listed some other
> websites which have many more memebers than this one. It would be
> well worth posting on these.
> Please let me know how you get on with getting a diagnosis.
> Sam
>
>
>