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LandauKleffnerSyndrome · Landau-Kleffner Syndrome
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help with getting diagnosed   Message List  
Reply | Forward Message #53 of 1721 |
Re: [LandauKleffnerSyndrome] help with getting diagnosed

Go see another Neuro. My daughter was dxed with LKS at 18 months and we took her to CHOP in Philidelphia. The dx is important to start working on improvements. My daughter is now 10 and is talking and such.
 
Call me if you like, 702-818-4792
 
Gina

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Thu Apr 12, 2007 8:37 pm

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donabug2001
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Forward 		Message #53 of 1721 |
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Hi my son just turned three and five mos ago he had his first seizure. An EEG showed he has characteristics for LKS although his neurologist is hesitant to... 		stacmonroe
Offline Send Email 		Apr 12, 2007
6:23 pm

Hi Stacey, If his EEG shows the spike and wave pattern, then he has LKS. Some neuros will call it an LKS variant due to him being 2 when diagnosed. But...
Sam
samcambridge
Offline Send Email 		Apr 12, 2007
8:52 pm

Sam- Thank you for responding so quickly. It is nice to hear from someone that not only knows what LKS is but has been through all of this. My sons name is...
stacmonroe
Offline Send Email 		Apr 13, 2007
1:24 am

Hi Stacey, I know how heart-breaking it is to see your child going through this. Tai lost everything, he would scream and scream with frustration. He also had...
Sam
samcambridge
Offline Send Email 		Apr 14, 2007
10:59 am

Sam- sorry the last email was sent too soon, I pushed the wrong button. How long did it take to get your son diagnosed and how soon did you start to see the...
stacmonroe
Offline Send Email 		Apr 13, 2007
1:27 am

Go see another Neuro. My daughter was dxed with LKS at 18 months and we took her to CHOP in Philidelphia. The dx is important to start working on improvements....
Gina S.
donabug2001
Offline Send Email 		Apr 12, 2007
11:25 pm

Hi Stacey! Just thought I'd jump in here too! :) Porcelain's 6 and was diagnosed with LKS back in October. At the time she was still speaking in sentences. She...
Andrea Hochstetler
andrea_hochs...
Offline Send Email 		Apr 13, 2007
8:55 pm
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