Sedona is on a extremely low dose of valium for her seizures (6mg 2xd). She did terrible on the meds and great off them so we have decided to stop most of her meds. Her Neuro only wanted to put her on more advanced meds at high doses. We have not seen him in 4 years and our Ped dr. is in charge of all her meds and care.

 

When she was on all her meds she had a 10 word vocab and understood little, now she is on little meds and she has a 500 word vocab and understands most with no regression. We were told by every neuro all 14 of them, that the meds stop visual seizures not eeg spikes.

 

Gina