Hi Jennifer,
I'm Sam, mum to Tai aged 5(thats him in the photo!). We live in
England. Tai was diagnosed with LKS in April 2004. Tai has never had
a seizure either, just a gradual loss of language, from a very young
age.
From all that I've read, classic Landau-Kleffner Syndrome is
diagnosed between the ages of 4-9, but Tai developed it much earlier
than this and there is no doubt that he has it. He had good early
language at around 18 months, but this didn't really develop much,
then it gradually disappeared. There are cases that are referred to
as LKS-varient, maybe your son has this? When did he have the EEG?
Was it a sleeping one? Did he have the continous spike and wave
activity? What did the neurologist say about it?
The major symptoms of LKS are loss of language, receptive and
expressive, although some children don't lose all language and some
may still understand language but have difficulties speaking. Some
children have autistic tendancies and may have been diagnosed with
ASD. Some have difficulties sleeping, some have poor behaviour, poor
concentration and poor social skills. The list goes on, but every
child is different. I think most people would agree that LKS is a
spectrum, and one child is probably very different to the next child
who has it.
If you look a couple of messages down, I have listed some other
websites which have many more memebers than this one. It would be
well worth posting on these.
Please let me know how you get on with getting a diagnosis.
Sam