--- In LandauKleffnerSyndrome@yahoogroups.com, "Sam"
<Sammycambridge@...> wrote:
>
> Hi,
>
> Tai also used sign language for a long time to communicate. But, as
> his language has slowly returned, we never or rarely use it anymore.
>
> Have any of these meds helped with Kerry's seizures or cleared her
> EEG? Does she still have regular EEGs? If not, it sounds like she
> needs to have one to find out what activity (if any) is going on. If
> there are any changes to her communication, I would definitely get
> her in for an EEG.
>
> I don't know where you are, we are in England, and currently Tai has
> EEGs every 8 weeks. We are very lucky to have the NHS, and not to
> have to deal with insurance, so I'm not sure what position you are
> in. Do you have a good neurologist you can talk to?
> Is she currently on any meds?
>
> Sam
>
Kerry is not on any med's right now. She has never had a clear EEG.
I am looking for a new nuerologist now. I dont feel they are doing
enough for her. Her last EEG was 3 years ago.