Hi,
Tai also used sign language for a long time to communicate. But, as
his language has slowly returned, we never or rarely use it anymore.
Have any of these meds helped with Kerry's seizures or cleared her
EEG? Does she still have regular EEGs? If not, it sounds like she
needs to have one to find out what activity (if any) is going on. If
there are any changes to her communication, I would definitely get
her in for an EEG.
I don't know where you are, we are in England, and currently Tai has
EEGs every 8 weeks. We are very lucky to have the NHS, and not to
have to deal with insurance, so I'm not sure what position you are
in. Do you have a good neurologist you can talk to?
Is she currently on any meds?
Sam