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LandauKleffnerSyndrome · Landau-Kleffner Syndrome
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Looking for help with Landau Kleffner   Message List  
Reply | Forward Message #48 of 1721 |
Re: Looking for help with Landau Kleffner

Hi,

Tai also used sign language for a long time to communicate. But, as
his language has slowly returned, we never or rarely use it anymore.

Have any of these meds helped with Kerry's seizures or cleared her
EEG? Does she still have regular EEGs? If not, it sounds like she
needs to have one to find out what activity (if any) is going on. If
there are any changes to her communication, I would definitely get
her in for an EEG.

I don't know where you are, we are in England, and currently Tai has
EEGs every 8 weeks. We are very lucky to have the NHS, and not to
have to deal with insurance, so I'm not sure what position you are
in. Do you have a good neurologist you can talk to?
Is she currently on any meds?

Sam





Tue Apr 10, 2007 10:10 am

samcambridge
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Message #48 of 1721 |
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I am looking for anyone that would like to share some info on Landau Kleffner. As far as child's behavior, types of seizures <if any> and anything else you...
toadally_froggy
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Apr 7, 2007
2:39 am

Hello!! Let me know if I can help. My 8yr old son was diagnosed August 2005 with LKS. He is also on the autism spectrum and the behavior---OH MY!!! We have...
Melissa F
zbetasmom
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Apr 7, 2007
10:23 pm

Hi, My 6 year old son Tai was diagnosed 3 years ago with LKS after losing all language, receptive and expressive. He never had an outward seizure though. His...
Sam
samcambridge
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Apr 8, 2007
10:10 am

... seizure ... or ... Thank you for responding! Kerry has taken Lamictal, Depakote & Depakene, Carbitrol, Clonipin, Keppra, Topamax, along with a few others....
toadally_froggy
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Apr 9, 2007
12:17 am

Hi, Tai also used sign language for a long time to communicate. But, as his language has slowly returned, we never or rarely use it anymore. Have any of these...
Sam
samcambridge
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Apr 10, 2007
10:10 am

... Kerry is not on any med's right now. She has never had a clear EEG. I am looking for a new nuerologist now. I dont feel they are doing enough for her. Her...
toadally_froggy
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Apr 11, 2007
1:17 am

Sedona is on a extremely low dose of valium for her seizures (6mg 2xd). She did terrible on the meds and great off them so we have decided to stop most of her...
Gina S.
donabug2001
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Apr 11, 2007
4:13 am
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