--- In LandauKleffnerSyndrome@yahoogroups.com, "Sam"
<Sammycambridge@...> wrote:
>
> Hi,
> My 6 year old son Tai was diagnosed 3 years ago with LKS after losing
> all language, receptive and expressive. He never had an outward
seizure
> though. His behaviour has been very challenging and difficult to say
> the least! We have seen great improvements though over the last year
or
> so. I don't know whether this is due to a clear EEG and improved
> language, but there has been a big improvement.
> What meds has your daughter tried? My son's EEG was normalised with
> hydrocortisone. From having no language at all, he is now talking and
> understanding again. It has been a long, hard road, but we can see
> light at the end of the tunnel now. You are definitely not alone!
> Sam
>
Thank you for responding!
Kerry has taken Lamictal, Depakote & Depakene, Carbitrol, Clonipin,
Keppra, Topamax, along with a few others. The latest was Predisone. It
only helped her gain 20 lbs.
When she was 2 she had lost all speech. She used sign language to
communicate for 3 years. By age 5 she was talking and doing good.
Now she has become aggressive and seems to have problems understanding
any verbal commands.