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Reply | Forward Message #445 of 1721 |
RE: [LandauKleffnerSyndrome] landaukleffner

Abeer,
 
I'm interested to know a bit more about your Ospolot experience. 
 
How long was your son on it, what sort of deterioration did you see, and how soon did the deterioration start?  We are considering Ospolot for our son and have heard some very good things about it, but as with all drugs, what helps one child can be the worst for another. 
 
Our worst experience so far has been Lamictal, which caused 8 months of hell for us and deterioration which he still has not recovered from, so we are extremely cautious about trying new drugs!  So far all that has helped is Zarontin/Ethosuximide.
 
Megan


To: LandauKleffnerSyndrome@yahoogroups.com
From: abeerelsharkawy@...
Date: Fri, 2 May 2008 09:15:54 +0000
Subject: [LandauKleffnerSyndrome] landaukleffner

HI EVERYONE.I NEED TO KNOW IF ANYONE HAS USED A DIFFERENT TREATMENT FOR
LKS. OTHER THAN HYDROCORTIZONE AND IF IT WORKED FOR HIM OR NOT. DOES
ANYONE KNOW OSPOLOT ? A GERMAN MEDICATION WHICH CAUSED TERRIBLE
DETERIORATION IN MY SONS CASE. THANK YOU
ABEER



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Fri May 2, 2008 11:15 am

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megan40hughes
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Forward 		Message #445 of 1721 |
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HI EVERYONE.I NEED TO KNOW IF ANYONE HAS USED A DIFFERENT TREATMENT FOR LKS. OTHER THAN HYDROCORTIZONE AND IF IT WORKED FOR HIM OR NOT. DOES ANYONE KNOW... 		abeerelsharkawy
Offline Send Email 		May 2, 2008
9:15 am

Abeer, I'm interested to know a bit more about your Ospolot experience. How long was your son on it, what sort of deterioration did you see, and how soon did...
Megan Hughes
megan40hughes
Offline Send Email 		May 2, 2008
11:15 am

befor ospolot my son used to speak but with a heavy tongue. the dr.olivier dulac decieded to try ospolot because no other med. were working. the dose of my son...
Abeer El-Sharkawy
abeerelsharkawy
Offline Send Email 		May 2, 2008
3:13 pm

Abeer, thanks for your reply. That does sound awful, to have such a big regression after only 2 weeks, particularly the increased seizures - after a similar...
Megan Hughes
megan40hughes
Offline Send Email 		May 3, 2008
3:35 pm

plz confirm that you have recived my mess. concerning ospolot Megan Hughes <megan63hughes@...> wrote: Abeer, I'm interested to know a bit...
Abeer El-Sharkawy
abeerelsharkawy
Offline Send Email 		May 2, 2008
3:49 pm

We have tried multiple epilepsy meds (lamictal, klonopin, keppra, topamax, and zarontin). Right now, she is on keppra & zarontin -- zarontin was the only one,...
Laura R.
laura05156
Offline Send Email 		May 2, 2008
12:01 pm

Lamictal was the worst here too (major regression).... and zarontin the best. A close second to the lamictal was the klonopin -- we took her off it after less...
Laura R.
laura05156
Offline Send Email 		May 2, 2008
12:04 pm
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