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LandauKleffnerSyndrome · Landau-Kleffner Syndrome
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Reply | Forward Message #3 of 1721 |
Hi,
My name is Jennifer and I have a son who was diagnosed with
Developmental Aphasia (meaning it wasn't acquired). I have yet to
talk/meet with anyone who has a child with this diagnosis. I've
wondered if he has Landau-Kleffner syndrome, but the major difference
is that he NEVER had normal language (as far as I have been aware).
Does the onset HAVE to be around the age of 3? Could his have been an
earlier onset? Before language even began? An EEG was done on him and
he has abnormal brain activity on both sides of his brain. But there
is no sign of seizures (from looking at the EEG of about 30 min.
duration--and a seizure has never been witnessed by anyone). My son
is now 9 years old. He is a SUPER sweet boy who aims to please. He is
not a trouble/problem child at ALL. He has had an incredibly difficult
time learning how to read---so much to remember (example: does "sh" say
"ch", "th", "h" or "sh"?)!! Any help from anyone would be most
appreciated. Also, just knowing someone who understands my
frustrations would be nice. :o) What are some of the major symptoms
of a child with Laundau-Kleffner?
Thank you and Blessings,
Jennifer




Tue Jul 4, 2006 5:59 pm

jenngager
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Message #3 of 1721 |
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Hi, My name is Jennifer and I have a son who was diagnosed with Developmental Aphasia (meaning it wasn't acquired). I have yet to talk/meet with anyone who...
Jennifer Gager
jenngager
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Jul 4, 2006
6:07 pm

Hi Jennifer, I'm Sam, mum to Tai aged 5(thats him in the photo!). We live in England. Tai was diagnosed with LKS in April 2004. Tai has never had a seizure...
Sam
samcambridge
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Jul 5, 2006
10:34 am

Hi Sam, I appreciate your reply. My son had his one and only EEG done in October of 2004. It was done in the morning and was only watched for about 30-40 min....
Jennifer Gager
jenngager
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Jul 5, 2006
2:52 pm

Hey again.... I was just thinking about saying that my son is NOT losing his language---but maybe he is, it is just so subtle? For example: when he was trying...
Jennifer Gager
jenngager
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Jul 5, 2006
3:00 pm

Hi Jennifer, Yes, this sounds very familiar. Not with Tai, but so many parents have reported this in their children. One day they learn something, the next its...
Sam
samcambridge
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Jul 6, 2006
1:36 pm

Jennifer- My daughter was dxed at 18 months. At 15 months she had a 10 word vocab but talked like a deaf child. At 18 months she lost everything, language,...
.
donabug2001
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Sep 24, 2006
4:43 pm
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